advertisement
advertisement

Chronic back pain, have to pop/crack dozens of times a day

24

Comments

  • Hmm. This thing is so confusing.  I have like all the other same symptoms as you.   The only thing I don’t have that I see most people do have is issues sleeping.   I sleep like a baby basically cause I’m exhausted from hurting all day and I have no pain when I’m off my feet. 

    One thing I’ve noticee that sort of makes the pressure in my back let go for a little bit is if I do a rapid motion wihere I push my chest up and lift my shoulders up at the same time.  I get this crack that sounds like 4 sets of knuckles being cracked and it does release some stiffness before it eventually comes back minutes later. 

    I see an orthopedist on Monday. Will be interested to see what he says.   to me it sounds like we all have arthritis of the back.  

  • ghost84gghost84 Posts: 2
    edited 04/15/2019 - 3:25 PM

    Bell- I get very bad migraine headaches as well and have same symptoms you described. Probably very tender in the neck and the base of the skull too right? 

    I am told by my PT therapist to do MacKenzie chin tucks and trunk stretching you can look them up on youtube. Also the double lacrosse ball massager balls work alot by laying on the floor and laying my neck down ontop of them and holding there for 5 minutes as a release.

    I have it opposite I wake up and feel crummy but gets better as I move around.

  • advertisement
  • Hi!


    I've
    had the same situation after I gave birth and nursed my baby in an
    uncomfortable position (i thought it was the reason). Fist it was
    just a pain in my elbows, then the neck and upper back and at least
    all my spine and chest felt like on fire from inside out. I've made a
    decision to feed a baby in different poses, finally stopped nursery
    but the ache didn't stop. That was terrible, I was not able to do
    housework, after an hour of walking I was on fire... Awful. 


    Wasn't
    able to hold my kid even for a minute, just pain and frustration. But
    I've got a cure! After months of hell, I started practicing yoga
    for the beginners and accidentally felt the relief. Day
    after day It feels better and better, but in the morning the pain
    returned that's why I decided to try sleeping on the floor, my
    husband said I'm insane, but mornings are better now. Here's good
    info about
    this it really works. Yoga and a flat “bed”. Hope you will try my
    method, it's super simple and makes life better without pain. 
    Get well









  • Ghost

    omg yes the base of my scull and tension in the neck.  It’s the worst.  

    I’m actually going to my PCP in the morning tomorrow because one of my arms is randomly having patches of hair going away and then beginning to grow back.  Now this could be stress related because I’ve been under a lot of stress and anxiety for a long time because of my daily pains, but could also be a symptom of an autoimmune disease. 

    I’m also going to a pain management clinic tomorrow afternoon as well to hopefully finally get some real meds to help me manage the pain better so I can be more active 


    So you also get the neck, upper back, and low back tightness while standing?

  • My symptoms go through phases though. I’ll go for a month where I wake up every morning and my back muscles are all sore.    Right now I’m in the phase where I wake up and feel great but the tightness starts a little after I’ve started being on my feet. 

  • advertisement
  • daniuthoffddaniuthoff Posts: 3
    edited 06/18/2019 - 10:56 AM

    Hey crackit! What you may be describing is Slipping Rib Syndrome, and it has many other names like rib subluxation, painful rib syndrome, clicking rib, displaced rib, or rib tip syndrome. A gross summary of this condition is when the joints connecting the rib to the spine or sternum become weak, which causes the rib to "slip" out of place. 

    I've had slipping ribs for a decade now--literally. I have about 4 currently in my back. I have a specific slipping rib located in my upper right thoracic region that I have to pop back into place easily over 100 times per day. It takes about a minute, sometimes even less, for it to fall right back out of the joint. I have to contort my body in all kinds of weird positions to get a pop. Sometimes I barely have to do anything at all to get those pops, like simply inhaling and inflating my lungs. It's relentless pain 24/7.

    I've been to a multitude of chiropractors, massage therapists, physical therapists, etc. It's always a temporary fix. Being as I've dealt with this condition for a decade now, I've had A LOT of time to research any and all information regarding back issues. There is very limited research about this condition..some doctors do not even believe in rib subluxations. And I can't even begin to describe my frustration with doctors who either don't take my pain/issue seriously, or think that a simple adjustment(s) will solve my problem.

    I'm at the point where I need surgery to correct this issue. Surgical options include removal of the affected costal cartilage and if necessary, correction of the flared rib. I'll be seeing an orthopedic surgeon soon to get this process started. If you think that your condition is severe, then I would highly recommend going to an orthopedic doctor.



    ____________________

    There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.

    Liz Veritas-Health Forum Moderator 

  • Hey crackit! I'm fairly certain what you're describing is Slipping Rib Syndrome, and it has many other names like rib subluxation, painful rib syndrome, clicking rib, displaced rib, or rib tip syndrome. A gross summary of this condition is when the joints connecting the rib to the spine or sternum become weak, which causes the rib to "slip" out of place. 

    I've had slipping ribs for a decade now--literally. I have about 4 currently in my back. I have a specific slipping rib located in my upper right thoracic region that I have to pop back into place easily over 100 times per day. It takes about a minute, sometimes even less, for it to fall right back out of the joint. I have to contort my body in all kinds of weird positions to get a pop. Sometimes I barely have to do anything at all to get those pops, like simply inhaling and inflating my lungs. It's relentless pain 24/7.

    I've been to a multitude of chiropractors, massage therapists, physical therapists, etc. It's always a temporary fix. Being as I've dealt with this condition for a decade now, I've had A LOT of time to research any and all information regarding back issues. There is very limited research about this condition..some doctors do not even believe in rib subluxations. And I can't even begin to describe my frustration with doctors who either don't take my pain/issue seriously, or think that a simple adjustment(s) will solve my problem.

    I'm at the point where I need surgery to correct this issue. Surgical options include removal of the affected costal cartilage and if necessary, correction of the flared rib. I'll be seeing an orthopedic surgeon soon to get this process started. If you think that your condition is severe, then I would highly recommend going to an orthopedic doctor for this procedure. 

  • daniuthoffddaniuthoff Posts: 3
    edited 06/18/2019 - 11:00 AM

    I want to add on to this because I'm realizing just how many people out there are having very similar issues. The research is limited and hard to find, so I hope I can add more information and key words for you guys to use to further your search! Like I said in my previous post, I've been dealing with back problems for over a decade now. I'm only 25 years old, but I always joke around that I feel like I'm a grandma from all the aches and pains.

    On a more serious note, I want to discuss the onset of problems that Slipping Rib Syndrome (SRS) has caused for me throughout the years. I deal with a wide range of issues, most of what has been discussed by the users in these threads. From the excessive back/neck popping throughout the years, my costovertebral joints (joints connecting ribs to spine) have continually strained themselves to the point of deterioration, which is where the osteoarthritis comes into play. For clarification purposes, also know that you can experience slipping ribs in your chest as well; costochondral joints and costal cartilage connects the ribs to the sternum, and ribs can slip out of the costochondral joints the same way in the chest.

    It's been stated in the research that affected people can experience postural problems in the upper back with forward hunching, which helps in alleviating some of the pain. Because I'm constantly hunching my head forward, overtime it caused my neck to curve forward. The neck problems I'm experiencing can be just as painful, if not worse, and bring forth new problems like pinched nerves, tingling and burning sensations, extreme tenderness, and very limited mobility--unless I crack my neck every which way. These cracks are by far the most painful. 

    The pain in my back/neck radiates to many different areas of my body and eventually manifests into a new problem, like pelvic tilt for example. The most commonly reported symptom of SRS is pain in the lower chest/upper abdomen region, or the costal margin. From personal experience, the pain in this region can come and go, but when it's present, it can be just as unbearable as my back pain. So now the misalignment of my ribs have caused further misalignment and pain of my neck, chest, and hips. It's important to know that usually where there's one slipping rib present, there's several more nearby. This creates a domino effect of pain, misalignment, nerve impingement, forms of arthritis, and most of all a vast hole in my wallet from the numerous unsuccessful doctor visits. 

    More severe cases might benefit more from a costovertebral block, which is an injection of anesthetic and anti-inflammatory medicine to "block" the pain. These are both temporary fixes. Unfortunately, these methods have yet to help me, which is why I stated the need for surgery in my previous post. The procedure has a couple of names I've seen it referred to as, but I've found the most info on costal cartilage excision. Basically, this procedure is the removal of the weak, deteriorating cartilage. 

    I hope that this helps some of you out there! The more information you know, the easier it is to find the answers you need. Hopefully the bold words help to broaden your searches and give you a better understanding of your own issues. And by the way, for what it's worth, I've found the most helpful information from forums like this! The evidence (or lack thereof) out there in medical case studies and journals doesn't compare to the abundance of evidence I've found from real-life accounts of people with the exact same symptoms. Good luck to you all!

  • Thank you so much for your input. I haven't heard of SRS but it certainly sounds the same as what I have, although I have no symptoms in the front chest rib area, and I do have the same sensation in joints around my pelvis, hips, groin as well.

    Interestingly, a nuclear bone scan revealed lesions at the back of a rib, where it connects to the spine. I suspect this was related to two shoulder subluxations I've had. Come to think of it, my symptoms in thoracic spine started after the first shoulder subluxed.

     Will look into this. 

  • Daniuthoff, have you seen the orthopaedic surgeon yet? 

    Does anyone else have experience with slipping rib syndrome? 

  • @crackit I am happy I have finally found a group with the same problem as me. I have exactly what you have described in your first post. I’m 25 years old, 6’5, bee suffering for  probably around 10 years.  I have mild scoliosis as well as the anterior pelvic tilt. I describe it as if the body were wrapped in chicken wire and one area has a “twist” in it which then pulls on other parts of the body, and when I pop or try to twist to make it feel better makes it better but brings a mother twist in the chicken wire. I have been to to massage and chiropractors to specialists to a back decompression doctor you can see the treatment at atlas33.com this is the only remedy I have found. I feel like I have the rib thing as I always push on my left or right ribs to pot it in to place. Or laying in bed have to shift my torso to a side with my shoulders flat to make it right. Also have everything to the t that you listed in the first post. Every days is a 4-6 On discomfort slash pain some days a 10 it’s like an itch you can’t scratch and it drives me nuts. I agree with another poster one cannot live with this. As far as cracking goes it can go from leaning back on something for the main spine crack or just slightly rubbing or touching certain areas of my body not even near the back to make something in the back crack to feel ok. But anyone that know me is I am 24-7 touching my upper body to feel ok. Have yet to try dry needling (do you mean acupuncture?) sleeping ground helps. I probably forgot some stuff but will remember soon. I am soo happy tho I’m not alone and found this forum. 

  • @mason_the_mason hello there! Yep sounds exactly the same as my issues. Day needling is the medical science backed version of Chinese acupuncture. It helps relieve my muscular tension, spasms etc. But only temporary relief. 

    I'm still not making any progress, and in fact getting worse. 

    I'm going to look at genetic testing, intolerances and autoimmune issues next, with an orthopaedic surgeon as a last resort.


    Do you have hypermobility syndrome also? 

  • Hey everyone, 

    I can’t believe there’s other people going through this. I would never wish this on anyone. 

    I’ve struggled with this need to pop, in my upper-mid back region for a few years now(I’m only 22 years). Sometimes I’m able to ignore it, sometimes I’d need a quick pop and be good for the rest of the day but recently it’s gotten so much worse. 

    I find myself bending over hard edges just to get a deep pop. This definitely can’t be good for my back and it’s caused me to seriously worry about my spine health (hence this forum). 

     To describe,  I feel like I have a “pressure point” in my thoracic region a few inches below my right shoulder blade, I’ve tried everything to pop this area and have only managed to do so a handful of times. What helped the most was using a foam roller, gave me a very deep pop and completely loosened me up. Though this didn’t last very long and soon enough I needed it again  

    Planning to try out chiropractor, and massage therapy as I haven’t done before. Honestly at this point I’ve started thinking surgery is the best bet. I’ll definitely need to look into this more, Apologies for the unhelpful post anyway, I hope we can find a solution to this. 

  • @timisenpai I'm sorry you're experiencing this at such a young age! Did anything happen to start it occurring? Coincidence or not, my thoracic issues started after a snowboarding accident left me with a partially dislocated shoulder that I didn't rehab properly. I've often wondered if that's related. Foam rolling provides a lot of temp relief for me. 


    Just an update on my situation: I recently had an urge to crack a spot on the left side of my thoracic spine this time (usually it's my right side that bothers me). No matter what I tried I could not do a self manipulation to relieve the tension. The muscle has been spasming constantly. I tried osteopath, chiropractor, physiotherapy, massage, dry needling, stretching, foam rolling, exercise, hydrotherapy pool and Valium - all within a few days. No relief whatsoever. In fact it has gotten worse. I saw my doc and he suspects I've done something to a costovertabrel joint and it is now inflamed. I'm convinced I have slipping rib syndrome and suspect it could even be subluxated currently. I reckon my forceful manipulations have caused some trauma to the joint and Osteo and Chiro made it worse.  Now it's a waiting game to see how long it will take to heal. I have some muscle relaxers and opiods to hopefully get me through the worst of it. 

    I haven't been able to bend to my left side past neutral! It's completely locked up. I'm going to try sleeping on the floor tonight in the hope that it puts itself "back" into place ;)

    I've been told by some medical professionals not to crack my joints as it may damage them. I've been told by others to go for it as its the on our way to loosen up. I don't know what to think. 

    I'm going to see a sports physician next. 

  • Twitch13TTwitch13 Posts: 1
    edited 07/29/2019 - 11:27 AM

    *Queue DJ Khaled yelling "another one"*

    I've been dealing with this pain and the wild exorcist-esque twisting of my spine that's caused it for well over 10 years I'd say. I'm 33 and I've always had motor tics and my neck twitches have definitely not helped my back pain but I think I've been headed in the right direction? I don't take any medication and haven't been to a doctor in a very long time which is where we're going next in my post.

    Let me begin my history by saying that while I was in the Navy I had an MRI done and was told I had Schmorl's Nodes. Could they be right? Maybe? Idk but they say those aren't supposed to cause pain and should eventually not be a problem; well, here we are and it's still a problem. Fast forward to present-day and I'm really beginning to see some changes in my pain levels. My back isn't hurting so bad, I'm not trying to touch my shoulder to my hip the way I used to and the pain in my knee has even seemed to subside. I don't think either will ever be 100% again but until I stop seeing results I'm just gonna keep doing what I'm doing. 

    I still crack my back so much.... so very much. I really wish I didn't feel like I had to do it, but lately it almost feels like I've been correcting the alignment of my spine? It's weird to explain but I've been focusing on proper posture and using some resistance cables at home to correct all of the muscle imbalances that I feel like are hindering me being pain free. [edit]. I keep telling myself the key here is to be consistent. I didn't get myself in this predicament overnight so this won't be healed so quickly either.

    I feel your pain everyone. I hope we can all get through this life with a little less torture than it already is and win this battle against back pain. 

    Instead of editing my post allow me to clarify it to be what I'm doing instead of it being a suggestion. I'm taking fish oil for my joints, turmeric for my inflammation, and magnesium for my bone health. Thanks for the edit but I feel it was unwarranted. 

    Edited by Liz Veritas-Health Forum Moderator To remove medical suggestions which is not permitted

  • Signed up to follow this thread. 30 y/o female with hyper mobility, chronic neck pain, shoulder tightness, pain in right side mid-back (when twisting, but still need to pop it to feel relief). And I can pop every joint many times a day. I thought it was a tick or anxiety until I learned about hyper mobility. I’ve been to many chiropractors and PTs. Just got on muscle relaxer. Love massage but nothing provides permanent relief. I’ve been working on posture and not looking down/texting so much for several months now, which helps. My mattress is too soft so in the market for a new one but not sure that will help much with the neck. Have tried every type of pillow out there and switched to sleeping on my side which helps. I had an MRI and they found a slight disc bulge but didn’t think that’s the culprit. I often feel quite hopeless about the neck pain. I may ask about injections, but curious to hear others’ experience. I have to pop to feel comfortable but am trying less with my back because of the pain on the right side, which only started a few months ago. 

  • This may seem like a random question, but does anyone experiencing these issues use a steroidal nasal spray for allergies? 

  • Hello. I have many of the same pains as the other posts. It's nice to know i'm not making it up in my head. I haven't tried half as many of the things you all have, but I am seeing my PCP today. I have the upper back pain/need to pop, lower back pain, even the wrist pain one commenter mentioned. I just want to feel better :( Does anyone have any ankle pain/swelling?

  • @bb095880 no ankle swelling from me

  • Just jumping in after lurking this thread and others and experiencing this pain for over a year. 

    I started feeling the need to pop my upper back constantly about a year and a half ago. I've had multiple tests done, an Xray and MRI of the thoracic area only detected some mild lumbar scoliosis, but if I apply pressure on a particular disc I can feel a lot of pain. An MRI of my lower back found loss of signal on a lumbar disc, but it shouldn't be enough of a concern or a cause of my upper back pain. An MRI of my cervical spine found nothing strange, but it did find some cysts in my sinuses that could be a cause of my headaches (although probably unrelated). 

    I too have joint Hypermobility like @crackit that I've had diagnosed since I was a kid, although my pain didn't start until last year when I was 21 or 22. I've noticed that another area I constantly crack is my left wrist, and I have a constant pain there as well. I tend to crack my fingers and other areas of my body as well, but that's mostly to relieve a very small tension that I would not call pain. 

    So far the only thing I've done that slightly relieves the pain is doing daily press ups as described in the McKenzie method. Although those are mostly for lower back pain, I find that if I focus on stretching my upper back as well WITHOUT cracking, the constant urge to crack diminishes and I can go on with my day without cracking as much, but the day I stop doing them, the urge comes back just like before. 

    I also feel like crazy trying to explain my doctors about the pain and urge to pop my spine. I've been to 2 GPs and one neurologist and none of them know anything about the symptoms I describe to them. 

    I'm getting frustrated about this situation to the point that I want to propose a researcher to do a study on this condition. I majored in Biochemistry, and even though I'm not pre-med, I'm sure there's someone out there interested in studying something as strange as this. 

    Does anyone know what the procedure for proposing a multiple case study looks like? I'm sure there's more people in the world suffering from this that haven't found this forum yet.


  • valadeasvvaladeas Posts: 2
    edited 08/17/2019 - 4:08 PM
    Hello all,

    I am yet another one with the same conditions. I signed up to write my story because I felt like this forum is the best consolidated for people like us and we should all help keep this forum active. I want to be detailed, so this is going to be a long one, so get your popcorn... :)

    Here is my story. Right about when I was 22 (fresh out of school), I decided to change my lifestyle by increasing my exercise level from 0 to 2.5 hours of Cardio and Resistance training a day while also starting a desk job sitting at my computer whenever I wasn’t exercising. I would run up a 20 story building 5 times in a row (elevator down), run outside, make new records in my running speed, lift 5 times a day.

    All that went great for my lifestyle plan, except that little by little I started developing lower back pain, initially right side, then across my lower back. Then I discovered cracking in the middle of my stretch. I never forget the first time I cracked my lower back. It scared me but also made me felt really amazing. Then over time the cracking increased, and so did my visits to Physiotherapists, Osteopathy Specialists, GP, Chrio. Chiro only made me worse by introducing cracking to my neck. I felt so terrible that my entire right side froze immediately after Chiro and I had to sleep on the floor for like two days to feel better. After that, I was cracking my lower back and my neck. Then thoracic, hip, sternum (yet I crack my sternum), the shoulder you name it.

    My chest and sternum pain is usually the most unbearable one when it flares up (it has a burning sensation around the sternum), then it’s rhomboid. When my rhomboids are tight, it even interferes with my breathing(sleeping on a massage ball usually helps). Also, my upper back pain usually switched from one side to another with either my left side being super tight or my right side. As for my lower back, I am so used to it. Just crack it 50 times a day and live with the pain. The situation got progressively worse where every year I discovered a new area of pain, and then cracking and then getting used to that area is painful. This eventually hit my head last year. One day I felt a sharp pain going to my head from behind my ear and I had crazy pain in my head and ear (something was pinching the nerve). Then the cracking started at my jaw which is really annoying when I chew. It eventually got better after 6 months and now like everything else comes and goes. And I do get pain around my face muscles if itis one of those fats where I am really right around my neck. It’s hard for me to move my eyebrows down and I have a headache as well.I have had a history of anxiety related to this pain and unrelated to this pain as well, but I made my peace with it now. I have learned that I can battle this pain for the rest of my life and I will be fine.

    I tried sleeping on the floor, Yoga, no lifting, a lot of lifting, only cardio, no cardio, no activity at all, resting, not sitting as often (standing desk). I had good days and bad days with all of them. I also tried to stop cracking. That only worked for like a couple of weeks and I discovered I can only decide and succeed in NOT CRACKING if I am already feeling a bit better. Normally, the thought of not cracking (as I am sure you all know) is a joke! After about 5 years, I am not focused on this back pain all the time. I sometimes just give up trying to make it better. Sometimes like now, I decide to pick up again and try a few things. In terms of diagnosis, I have had pretty much what others mentioned. Slipping Rib Syndrome (Sometimes when I wake up, I can move my rib to its right place and it’s audible), Joint Hypermobility Syndrome, Pelvic tilt, etc.

    Over the years, and with the support of my loving partner who is also a Personal Training Specialist, this is what i have come to.
    Disclaimer: This is my personal experience and theories and I am nowhere close to someone who can advise or diagnose.

    I was the one who started my back pain by putting a lot of strain on it without giving it enough rest. That caused my muscles to tighten. Tight muscles put pressure on joints. You change the mechanics by cracking and momentarily getting a relief. But if the muscle is tight or needs to be tight, it will go back again. This is why over the years I have realized that the cracking is not the problem. The problem is why the muscles are tight. This might sound very simple for many of you guys, but it took me a while to discover. For example, when I decided not to crack and I was successful for two weeks, it was because at that time and for some reason, my muscles weren’t tight, hence reducing the urge to crack. When my mid-back muscles are tight, I DO HAVE Slipping Rib Syndrome. When they aren’t tight, I don't.

    What I have also realized in my body is that cracking is one of the things that makes your muscles tight (think about all the strain you put on it). So usually I am in this cycle that my muscle is tight, then I crack it, then it stays tight, then more cracking then...Sitting also makes my lower back very tight which eventually takes my whole back all the way up to the neck. Lifting also (obviously) makes my muscles tight, even tightness in my legs contribute to my urge to crack my lower back which then contributes to the rest of cracking.

    But I know for sure that not lifting at all also isn’t helpful for me since it makes my joint lazy and hypermobile, WHICH muscles tighten to protect it, WHICH leads to more cracking. I even think bad sleeping habits and matters is the cause of my stiffness in the morning, which guess what, I crack to address it. I also know that after 5 years, my nervous system has gotten really good at experiencing pain and experienced pain for almost anything and my muscles EASILY react and tighten to anything. For example, pain from lifting is not the same as when I didn’t have these issues. Right now when I lift, my muscles hurt and tighten like I crashed my car into a tree and broke my spine! Also, anxiety and stress for sure are one of the biggest cause.

    What I have come to (again very personal and I can be 100% wrong) is that my muscles and nervous system have gotten really good at experiencing pain and getting tight, so somehow I have to live my day that stops them from doing that. Light exercise and stability work that doesn’t make your muscles too sore(again sore in my life means terrible tightness), avoiding stress and anxiety, not sitting too much, taking frequent walks, yoga, sleeping on the matt to relax, telling your nervous system that things are ok in the back and relax, All that....

    Keeping this balance is obviously hard for me. I go to the office and something is broken. I get stress and I sit for hours trying to fix it ... bam next day comes extremely tight muscles and cracking. I go to the gym and get excited and overwork my muscles and bam ... I pass out without consciously thinking about my sleeping position and bam ...

    Sorry for a ridiculously long message. I really want this forum to win!
  • I have been dealing with multiple issues which I think are mostly stemming from my back since the beginning of the year. I am 45 and have been in good health and weight most of my life.  I am hyper mobile and have had troubles with my hands since my late teens.  Developed carpal tunnel and just dealt with it and changed the way I do things. In my 30’s I twisted my ankle badly and it healed ok but it is my bad ankle, so if things are going to happen it is alway that one.  Other than hands, things have been ok.  

    Fast forward to my 40’s.  Hands still bad and also arthritis in fingertips.   Hurt my same bad foot, this time on the side by they little toe, foot just gave out and rolled over. Pretty sure I broke a bone but it healed. Then a year after my feet  started hurting in the mornings.  Waking up with sausage fingers and walking like penguin.  

    I’m 45 now and finally went to the podiatrist and he gave me orthotics.  Bad right foot is flat and a nagging swelling of the muscle by my arch.  Then since the beginning of this year I have had pain in my left elbow, which travelled up to my shoulder. Muscle spasms and pain in shoulder was miserable.  I had my arm dry needled by PT and Osteopath seemed to fix my shoulder.  PT figured it was T4 causing all my hand problems and also T10.  Pelvis is tilted and uneven, so forward to left and up on right.  Back was super sore for awhile and using a foam roller every night in order to get a good sleep.  Figured out that if I don’t sleep on my sides that my hands were ok in the mornings, only took 20 plus years to figure that one out. 

    Next pain in right elbow and sore t10, left ankle and hip, right foot is turning out and right knee is sore, right wrist and left pointer finger.   Back it still sore and also having a tight band around chest, nerve pain in fingertips, tingling upper lip, upper shoulders and back and feeling like my ribs are digging into my stomach when I sit too much.  Also had a couple weeks of frightening dizzy spells which put me in bed for the rest of the day.  Now tight hamstrings and snapping on left side when I walk.  I have been foam rolling every night and sometimes in the morning to crack my t4 and t10’and above to get relief.  It helps with my elbow pain.  My neck has been acting up too and it feels like it needs to crack and also my right shoulder.  I have been off work since end of April and I am feeling pressure to get back to work. 

    Avalanche of symptoms this year has made me question is it my age, perimenopause,  new iud with progesterone or the horrible flu that I came down with on Christmas Eve that could have precipitated things.  I also started taking steroid nasal sprays this last year to finally get rid of chronic sinus infections.  Who knows what got this ball rolling.

    So now I’m going to massage therapy, PT and seeing an osteopath.  I am much better if I don’t sit and do anything with my hands out in front of me, driving is uncomfortable but at least bearable now.  However, I can’t afford to get all this therapy!

    All of this has led to searching like yourselves and I have come across this post and am like, these are my people.  I have also done a lot of reading on Ehlera Danlos syndrome and am thinking of bringing it up to my dr for my next appt.  Has anyone else looked into this?  Still looking for answers and waiting for the next body part to start hurting.




  • Hello. I am 32 years old. I am experiencing most of the symptoms that all of you are. I'm currently going to neurologist for pain management. I have been to orthopedic surgeon and a chiropractor. I have had an EEG and two EMG tests done. I have been told so far that I have degenerative disc disease, scoliosis, and a spot of arthritis in my neck,(which is where most of my pain is, but I have only had am MRI done on my lumbar and thoracic.), Carpal tunnel syndrome in both hands and nerve damage to both legs. I have multiple bulging discs and a few slipped in my back. I also have two pinched nerves in my back. I am glad that I ran into this forum. I have been searching for something online because they told me I was too young for surgery that I'm desperately begging for!!! Everyone I see says that my condition doesn't look serious except for my neurologist , who recommended me to see a surgeon. He said he didn't see it as a medical emergency. I asked him how many patients he had in his room that we're worse off or better than me. his answer was I wouldn't recommend you to see a surgeon if your back was normal. I am almost too exhausted to try and continue to find the right option for myself because of the pain. I have a toddler who I would love to be able to play with and a lot of life goals that I feel like I am never going to be able to achieve. I am not really sure where to go from here.I work a retail job that requires heavy lifting and they can fire me at any point in time if I am not able to do the tasks that are put in front of me. Basically I am killing myself trying to get my health insurance to figure out a solution that will fix me. I have the popping sensation all over my body but it's not intentional. I feel like if somebody dropped me from the sky out of a plane and I landed on my back that I would feel better. I hope that all of you get the answers that you need, I hope that you all feel better. Do any of you have tingling sensation s in any other extremities of your body? I  must add degenerative disc disease ran in my family, and unfortunately I also have dentures after many years of taking good care of my teeth. Along with TMJ. 

  • @nayfur I know what you mean about if you fell out of a plane and landed on your back you would feel better. I wish I could say I've found something that helps, but unfortunately for me it is getting worse. I'm only 31 and this started about 5 years ago for me. Currently going through another bout of what feels like either a subluxated rib at the back, or inflamed joint. I'm sleeping on the floor tonight and drugged up on opiods and muscle relaxers. My advice is to not give up. Eventually hopefully one of us at least will find something that helps and can share it on here. I've found its important to not focus on the pain or the sensation as it makes it worse. 

    I'm currently waiting to see a sports physician, and also trying to dead hang from a bar for 1 min every day to stretch the shoulder and decompress the spine. I'm also trying to stretch the shoulders more and do more back pulling exercises. I've had my genes tested as well as food intolerances, and it turns out I have some auto immune problems resulting to food allergies. This could be a part of the problem, so will be interesting to see if I can find relief with ruling out the reactive foods. 

    Does anyone else get the feeling like one side of the vertebrae gets d so you have to bend sideways to clunk it loose? 

  • I just read this thread and saw crackit mention using BPC-157 and TB-500 to try to heal the ligaments of the spine. I have similar problems but mostly in my cervical spine and have also been thinking about using these peptides. Has anyone had any luck with them?

  • Hello, I am in from Northern Ohio and checking in. I am 36 and suffering for about a decade. I was very athletic up to 29 y/o and participated in lots of contact sports, barbell, and traditional lifting. I am still in moderately good shape, but feel like my spine is 100 years old. I am NOT hyper mobile, and lack normal flexibility. I have had and still have a high stress professional career. I have disc degradation in the L-spine (not the cracking area) and minor/medium overall spinal curvature abnormalities.


    I have the common symptom everyone here seams to have here, and few outside this group understand. I crack 50-100x a day on bad days. The tightness is nerve racking, painful, and uncomfortable and cracking is the only way to relieve it. When it’s really bad, the area becomes sore to palpation and at that point 800 mg Ibuprofen helps immensely. Sometimes it’s easy to crack other times I look like some sort of weirdo contortionist/extrocist trying to get it to pop any way I can. When it’s bad, I definitely also crack my hands much more, it’s like the tension travels right down my arms.


    I signed up with veritas just for this thread and I see many of you did the same. This is the most information I have found on this condition in one place by far! I hope we can find something that really helps, and I am definitely going to check out the subluxating rib theory. Like most of you, I have tried everything, and always get excited about what theory to try or the next PT device to buy. You have to love the human spirit, it never gives up.


    I have tried:

    X-rays, MRI’s, orthopedic surgeons, a spinal surgeon, chiropractors, dry needling, athletic deep massage therapy, physical therapy, the McKenzie method, rolling, standing desks, $1K chairs, postural work, sleep posture, mobility training, and much more! It is actually one of the reasons/motivations I am now enrolled as an M3 in Medical School.


    Some stuff works better than others and other stuff turns out downright pernicious, but I would be remiss to say I ever found “the answer”.


    Nice meeting all of you, I hope we can find the answer together!

  • Yes, @crackit

    I sometimes wake up feeling my right side muscle is half it’s size and as I bend one side to stretch it, my ribs go into its place one at a time!

    I also agree that trying some stuff is just BAD! while trying some other stuff is much better! 

    for example, holding my abs enraged at all time and making sure that I don’t extend my lower back definitely helps me most of the time!

    I am also trying a bunch of mobility work, but no definitive answer so far ... 

  • Has anyone tried amitriptyline (endep) or Orphenadrine (Norflex) for pain/inflammation/muscle spasms? 

    Has anyone had any luck with cortisone injections in the thoracic spine area? 

  • SchlitzSSchlitz Posts: 9
    edited 09/27/2019 - 9:45 AM

    Hey crackit....have had same issues as your describe after multiple compression fractures last year (6 total). Nothing works! One thing I have found to help take the "edge" off a bit is being on diclofenac. Twice a day pill. It is not a narcotic. Also as Valadeas has said, if I really focus on breathing through my abs/stomach and not my chest, it helps calm down my back a bit.

  • I’ve had similar issues for a couple of years. I’m unable to sit/ stand in the position for very long. I’ve tried heated pads, sleeping positions and even received 6 shots in my back, the shots only provided temporary relief. I feel like I always need to crack my back even though most of the time I’m unable to. I have minor  scoliosis . Going to visit another doctor soon ! 

advertisement
Sign In or Join Us to comment.