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Back surgery too detether has left me in pain "Pseudomeningocele"

Hi all was hoping for a little advice o thoughts 

Last april 2016 I had a second op to detether the spinal cord as it was causing some nerve issues which was effecting the bladder and bowels.

Anyways about 10 days post-op I started getting some nasty lower pains which prevented me from walking or sitting and I needed to lie down to ease the pain, at first when i lied down I got a sharp pain in the lower back where it hurt which subsided but not long after my head started to hurt.

After a short time the pain subsided but I decided to get up as my head was hurting, When I stood up I got a rush of pain in my back then a weired sensation up my back and a sharp pain in my head for a split second and then the pain in the back would get worse again.

Anyways I got in contact with the surgeon who wanted a MRI and could not find any hypertension etc and sent me to pain management etc .

After physio and pain meds etc I still have this issue and I noticed a lump on my back when the pain was bad or about to start and the area was moist. Again I went back to the surgeon and mentioned all this and also suggested that having a MRI lying down may not show all the problem as the pain in the lower back eases and maybe a load baring MRI was necessary. However he mentioned I did have a Pseudomeningocele which did show up on my previous MRI but did agree a standing/sitting MRI may be beneficial.


I am awaiting the results from those.


My main question is to anyone who has had similar issues ! are these types of headaches caused my pressure from the pseudomeningocele ? should this be repaired as ive had this pain for 18 months now and is stopping me having a life as all I seem to do is lie on the bed :(


   

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Comments

  • Good luck with your results.  At least this will rule out the things it is not and give you something to work with.

    AJ

  • AJGormitAAJGormit Posts: 2,087
    edited 07/23/2019 - 1:08 PM

    so sorry s1m0n1980 i missed this was your first message.

    Welcome to Veritas Health Forum

    i have added two links below to help new members with information and these also contain the forum rules.  there is lots of material to research that will give you the power of knowledge.

    welcome to spine health

    all new members should take the system tutorial 
    aj 
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  • Well had my results and discussion with my specialist . The psuedo is causing bad heads due to small leak that occurs when pressure changes mainly when bearing down. Looks like I also have a nerve that also escapes into it which is causing some of the pain. What annoys me is he doesn't want to repair it and has suggested a spinal cord stimulator.


    I'm not sure how that will work and how difficult it will be with a psuedo and with me having congenital scoliosis and spinabifida occulta.

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