I’m new to the boards, although not new to pain. I’ll try to make this short. For reference, I’m 28 and started having chronic pain and severe spasms at 14.
After being completely ignored about my chronic pain and severe spasms for years, after switching doctors, I finally have a doctor who took my pain issues seriously enough to order tests. I’ve had a full spine X-ray that revealed SBO, and a lumbar MRI that revealed two discs with DDD, both bulging, and one is torn.
My doctor had requested an MRI for my whole spine, however my insurance wouldn’t authorize it. We’re starting a treatment plan to help with the DDD.
The problem I’m having now with the doctor is that they’re completely ignoring the severe spasms. These muscle spasms aren’t localized or short; the last one affected my entire back and neck, lasted multiple days, and landed me in the ER with a completely immobilized back and neck, an unrelenting feeling as though my muscles were being pulled beyond what they should, and pain so severe I vomited. Since that spasm, I’ve had sciatica and increased bladder urgency (about two months with these new symptoms).
I’ve had spasms that bad a total of three times in my life, and each time it feels like I’m going to be broken in half by my own muscles. No amount of home treatment stops it when it starts, and I’m literally unable to function for days on end. They come without warning and seem random.
The frustration I’m having is that when my current doctor put in the request for pre-authorization for MRI with my insurance, the only thing they put on there was chronic pain and SBO, nothing of the severe spasms, or of the sciatica and urgency I’m suddenly experiencing. The doctor ordered PT for 8 weeks, and if that doesn’t help, they’ll send me to an orthopedic, but still nothing about the other issues. I’m trying to be thankful about finally getting some treatment and validation, but I still feel like my doctor is ignoring the bigger issue that literally makes me a writhing, contorted mess and only focusing on the “easier” issues. Like, PT might help with the chronic pain, but I’m skeptical of it helping severe full spine spasms that come at random and we don’t have answers for.
Has anyone had any success getting a doctor to listen to your symptoms properly? I want to know what’s causing these spasms and to be able to have an actual plan of action for them so I’m not a complete wreak when they happen.