This forum is my last option, because nowhere I turn I find answers.
I’m a 44 years old woman, and I have been on long term steroids for Lupus. 17 years of Prednisone with average dosage 10mgs per day. Of course I have Osteoporosis, but it hasn’t been an issue yet.
In November 2017 I was diagnosed with Lymphoma and immediatedly started a chemo treatment that was quite strong. The fatigue was horrible and I spent the next few months sitting on a recliner. And sleeping on it too. November and December I was too tired to do anything and spent them starting at a wall or trying to focus enough to read a few pages of a book.
On Jan 2, I had to get dressed to go to the hospital and as I pulled on one of my UGG boot, I felt fireworks across my lower back. Got locked in place and fell backwards.
Fortunately I was already low to the ground but the scare was big.
Long story short I had lower back pain for two weeks. And then it went away.
A few days later, I try to push my daughter away from the edge of the bed as she was about to fall. Well I put my hands under her body and when I pull I hear it again in my lower back. It almost takes the strength out of my knees. Another week of dull pain to deal with.
By now I’m more careful, I use a cane, I walk slowly. I’m still doing chemo and that on top of that it’s just so horrible. But I keep going. Nurture the pain. Try to rest but also to move my body a little more.
Next I go to the hospital for another chemo treatment which involves me going to the bathroom every hour and in a rush. One of these bathroom runs I quickly try to sit on the toilet but stop mid way as my back cracks again. I call for help and they get me to bed.
When I go home from that hospital stay I try to go up the stairs to the bathroom but now instead of just pain, I start to get spasms. Bad ones. I scream from the pain. Long story short I almost passed out in the bathroom as I was sitting on the toilet fortunately I had my husband take me immediately to bed and I felt better. But I did some research and decided to give myself bed rest for a few days. Everytime I moved my back spasmed. It was horrible. I had a bathroom next to the bed and even that was hard to get to.
I asked my husband to buy me diapers. I couldn’t deal with the pain.
After reading some more I decided to take a Motrin (not advisable when doing chemo). I was desperate.
The Motrin helped a lot. I walked again. I switched beds.
Next stay at the hospital I hurt myself again going to the bathroom. I got spasms again. I called the nurse at 3am to help me up and as I got up the spasms were bad. I made it to the commode but when I sat down the back didn’t like it so the spasms got worse. Just like I told my husband, I asked this nurse to quickly put me back in bed but she didn’t. I think she was waiting for me to stop hurting. I didn’t and I passed out from the pain.
They ran all checks on me but I was fine. Heart fine.
I stayed in the hospital in diapers and only moving with slow movements to avoid triggering a spasm.
Back home I was allowed to take Motrin and felt better. I changed bed and slept on a hard mattress. Woke up with spasm. Took a Motrin felt better.
Moved back to the recliner
Started doing gentle stretches and they seemed to work. I stopped the Motrin but I still walked slow and carefully. Not running anywhere.
This past Friday I had my last chemo. Saturday morning I’m sleeping on the recliner and as I wake up I unintentionally stretch, like anybody streches in the morning. But I hear a POP this time mid spine and then pain that radiates both sides around my back.
Of course by now I’m cursing. But I take a Motrin and hope for the best. Again slow walking. Not even stretches.
Today I get up to pee, make my 3 feet journey to the commode and decided to change pants. As I put one leg in the pant I’m already worried, but it works. As I put the second leg in, which required me to lift it a bit more than the first leg, I hear my back talking to me again, with a pop on the lower left side. I go down to the floor to assess the damage. No spasms but pain. I slowly make it back to the recliner and sit down. Trying not to let it bring me down.
I have had an MRI and found very little. Minor relatively acute superior endplate depressions at L1 and L3. Minor edema within these endplates suggests acuity. No canal stenosis. No foraminal encroachement. Alignment is satisfactory. Lumbar vertebral bodies are normal in stature.
I am sure the lack of movement plus the chemo and the osteoporosis and the suppressed immuno system are all contributing factors. But I can’t really find on my lymphoma board nobody with the same repetitive problem and so I can’t get any tips or ideas or even a name for what is happening to me. And if this is somewhat normal.
So you guys are my last resource. If you don’t know, nobody knows. Do you have any idea why my back is doing this? And will it get better with time, after the chemo is out of my system and I start physical therapy?
Is it normal to throw out your back all the time like this?
Thank you so much for any piece of information that can help me figure out what is going on and what I can do to make it better.