Hi, I just joined today and have read many posts and decided to post my situation. Before I start, I just want to say to everyone here how sorry I am that you all suffer pain. It’s a very difficult and lonely life we lead as we are so misunderstood. Unless one is in chronic pain 24/7 no one gets it.
Everyone on my mom’s side of the family suffers from back pain. I can remember from childhood years how my back would hurt often. My monthly menstral cycle always pained my back and during labor the pain was all in my back. I have battled with my weight all my life. When my back finally gave out, I was physically fit, power walking 3 miles 4 times a week. I suffered terrible pain in my back but heck, I was looking good. Then I had gotten pneumonia, relapsed and had gotten double pneumonia and while I was in the hospital my back simply gave out. The pain was excruciating. MRI’s and CAT and X-rays revealed L-5, S-1 were slipping. Back fusion surgery # 1 was necessary in 2002. My level of pain increased during that following year making it necessary for me to be on heavy duty narcotics. I was taking 11x 80’s daily and 16 x fentanyl (buccal/sublingual) tablets daily for breakthrough pain. I still suffered horrifying pain. Fusion back surgery #2 was needed but I opted for a gastric bypass hoping the weight loss would offer me help in the pain department. It did not. 2004 was my next fusion surgery. Pain only increased however, I weaned off of the fentanyl regardless as I started having terrible side effects. I also weaned down to 9 x 60’s. 2012 was my third back fusion done in  I stayed there for 11 days as I had gotten sepsis. The following year I fell badly. I failed to mention during all this time that I fell many times. But that one fall broke a rod and 2014 I had my 4th back fusion again at the . My dear mother-in-love died that same day. I may have my years wrong, it’s very possible as everyday was the same repeated nightmare of pain.
Okay, I’ve tried acupuncture, I had a Medtronic spinal stimulator installed along with the battery inplanted on my butt. Horrible, didn’t help. Had it removed. Tried the TRIAL for a morphine pump, never felt any relief. Edpidermals, facet shots, you name it, I tried it. Now I’m going through with the Prialt trial. I’m scared! I’ve heard what we all have heard. The psychotic episodes!!! I’m already depressed and confined to my bed now for years. But what choice do I have? This is my story. I’d love to hear whatever anyone has to say about their horrid back stories and the results from their Prialt experiences. I will be having this done next month.
Thank you for reading my short novel. God bless you all. I’ve got good shoulders should anyone need to talk. I care.
Edited by Liz, Spine-health Moderator To remove name of medical facility