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TMJ - severe dizziness

My TMJ problems started few years after having lots of dental work done in 2014 (crowns, bridges etc). At first I had headaches right above my eye and behind it. In April 2018 my jaw locked open approx 10 minutes during dental procedure. I was able to unlock it but my dentist did not mention to me that I have TMJ issue and should have this checked out ASAP. In June I started getting severe dizziness and had pressure on the back of my head. Other symptoms were clogged ears, ear ringing, very stiff neck, fuzzy vision, numbness in right hand. I did not connect dots that the dizziness could have been caused by TMJ. Therefore, I went to ER 8 times, was admitted to the hospital, had multiple MRIs and CT scans of brain, neck and jaw. All type of blood work done. I was checked by ENT, control disease doctor and neurologist. There was nothing wrong with my neck C1 or C2. My third levels were good. All tests were negative and none of the doctors could figure out why I felt so dizzy and lightheaded. None of them mentioned jaw. 


At this point I decided that maybe this has to do something with my jaw and went to TMJ dentist specialist. CT scan of my jaw showed that my bite was off and my lower jaw was pushed backwards pressing on ears, veins and nerves. I agreed to splint therapy $5000 that I have to wear 24/7. Now I’m 2 weeks into the treatment and dizziness is still severe. I also started therapy with chiropractor on my neck. But nothing is helping. I never was much in pain so this is not an issue but the dizziness in ruining my life. I feel constantly dizzy or about to faint. I am unable to drive since June and not able to work almost 4 months. Did anyone have gone through similar situation? Did the splint therapy work for dizziness and how long did it take?

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Comments

  • I am dealing with dizziness since around June 2018, I have some mild cervical and thoracic wear/tear that had caused me a lot of trouble...pain gone, minor stiffness in neck. neuro sensations are still there( some tingling, numbness in hands, fingers, face back) but so far the docs dont agree on what causes the vertigo/dizzyiness,(i do have sinusitis, but still docs dont think it is the cause) I will have to see a neurologists. best to ask everyone  I suppose. other members here have this symptom, too.

  • Hi, I wanted to give you an update on my situation. I am on week 9 of wearing splint and the symptoms improved but are still disabling me from normal living like driving car or working (dizziness, brain fog and neck muscle tension). I have seen today another TMJ specialist at University of Maryland dental school and was prescribed Norotriptiline since he thinks my nerves in face, neck and head are on fire. Like I developed some over sensitivity. This could have started because of the jaw issue but it’s a separate illness. Also he referred me to otolaryngologist at John Hopkins hospital which I am going to see next week. I will you give an update next week in case I find out something. Hope you all are doing well. 

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  • Hi , I have had a lot of these symtoms for 1+ years now and was only diagnosed with tmj 2 months ago. I was not aware that symptoms such as hand numbness, clogged ears and headaches behind the eyes where related to tmj until now. My dentist gave me a mouth guard to wear at night time only 1 month ago - it has helped to a degree with the severe pain I used to experience at night, but the pain is still there. I was told that my jaw is displaced on one side and that I may be grinding my teeth at night which is causing my pain. My biggest problems I am experiencing is the clogged ears and neck / shoulder pain. The muscles in one side of my neck and shoulders tense up, cramp and become painful at the slightest thing such as yawning. It can be unbearable at times. I am wondering if it was your dentist or doctor who referred you to the tmj specialist or was it a self referral? I have mentioned my symptoms to my doctor before but was told if it is jaw and face pain I should see my dentist. I am interested in seeing a tmj specialist as I'm almost sure this is what is causing my pain. I wish you luck at the hospital next week and hope you get some answers. 

  • I have also major problem with my neck muscles. Tension can be crazy at times. My shoulders have many knots and now my hip is off as well. I am seeing chiropractor 3 times/week and it helps. Otherwise not sure how I would function at all. Typically you do not need the referral to TMJ specialist (neuromuscular dentist). The one I have seen at the hospital for second opinion I needed a referral. I asked current TMJ dentist to give me one since I was not getting better and had concerns. They also accepted my health insurance to pay for this consultation. I would definitely check with few of them before you make the decision. I have spent already $6k and not much have changed. Also... no one pointed that I have problem with my jaw it was me googling my symptoms and figuring it out. I was 3 months running to ER and hospitals not knowing what’s wrong with me. But my main issue is the dizziness. Hope this helps. 

  • i heard of lots of misdiagnosis or lack of diagnosis as it's my case....from what i know i also have teeth grinding and have A nightguard, too, but that it's rather a symptom of something else neck related as i can feel my neck tension triggers my  jaw pain...same with eye and other body pain :(

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