Hello, I am new here and to forums in general. My story feels too long to tell but Here it goes... I am a 52 year old single mom & former teacher. After 4 neck surgeries, 2 anteriorly & 2 posteriorly, I am fused C2-T-1. I wish I could say I was better, but it has been 1 1/2 years since my last surgery, and I’m not able to work, or do much without hurting myself. I am finally fused, but it is at a cost. Its been a long road.
I’d like to find someone with the same levels fused to talk to. But also just looking to learn about how people live with pain, support their families, learn to be a different person really. How to deal with not really having a “valid” or “socially recognized” injury or illness like cancer , ALS, or being paralyzed. How to stop trying to explain to people.
Im not all doom & gloom. I’ve made some progress i’m proud of & I have my good days, but I’m struggling & need help.