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February 2019 Surgery Buddies

Post here if you are having surgery in February, 2019.

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Comments

  • Hello! I am so glad I found this site. There is so much wonderful information on here. I am having an L5-S1 ALIF on 2/5/19. I am a nervous wreck and have questioned my decision to pursue this surgery more times than I can count. However, I continue to have horrible days of pain to remind me why it was scheduled in the first place. I have had PT, numerous injections, more rounds of Prednisone than I can count, Norco, TENS unit, etc. Nothing has helped for long. 3 years ago my doc suggested microdiscectomy/decompression. Now I am “beyond that repair” and am bone on bone. I am trying to prepare myself and my home for this surgery but continue to struggle. I am an RN and a very busy mom of 2 teenage boys, 13 and 15. I am not used to taking it easy and needed assistance from others. This will be a struggle for me. Any other advice or suggestions are welcome. 

  • Hi Nik, my surgery is on 7th February, so a couple of days after yours. I am 46 and have had hyperkyphosis, apparent since I was a teenager, getting worse over the years. I have managed pain through exercise in the past and my spine has never really stopped me from doing anything. But it has been painful and has made me self conscious.

    Last 10 years have been much harder and the last 3 have been grim. I have global pain with debilitating headaches and fatigue. My curve has progressed to 95 degrees and i have spondylolisthesis of 2 vertebrate.

    I see my surgeon on 28th Jan, to get results of MRI and to learn how long my fusion will need to be.

    I am very excited at the prospect of relieving my symptoms and getting my life back. I am also excited about the aesthetic improvement and hopefully increase in confidence. I am really scared of the post OP pain 


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  • Massive apologies to admins, as i attempted to start posting before reading rules/FAQs...I tried to post multiple times, thinking attempts were failing. Sorry for the unnecessary workload


  • Hi Amanda! I am 45 so we can walk this journey together. I too am excited for the end results and am scared to death for post op/recovery phase. Everything I keep reading talks about patience during recovery. This will be tough as I want instant gratification. I know this won’t happen but one can wish. :)  part of my fear is that I am doing this at such a young age I fear the prospect of other fusions. I also fear that I will be pressured to return to work too soon. Yes, I need money to support my family but I also do not want to ruin or have a set back in recovery. Keep me posted on your MRI results and what type of fusion you are having. Take care! Nikki

  • memerainboltmemerainbolt IndianaPosts: 4,557
    edited 07/31/2019 - 11:29 AM

    nikcanrn
    Welcome to Feb. Surgery Buddies! We have so many great articles to help you get through this. Below is a link to about every question you could have. But let me know if you need more. When we are used to being super mom's it's hard to stop and even harder to ask or receive help. But it's not the end of the world if you do. Please try to mentally deal with this before surgery so your recovery can go smooth. 

    Take care and keep us posted.

    AmandaL
    Welcome to Feb. Surgery Buddies! Please let us know the results of your MRI on the 28th. We have a Moderator, WLLady, who had a full fusion In Dec, 2017. Her thread is titled "my scoliosis" and goes into detail of the surgery and recovery, if you would like to read it. But I will let her know you are here. That's ok about the multiple discussions, we just delete them. Read the link I gave nikcanrn, a lot of valuable information.

    Take care and keep us posted.

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  • FionaFayeFFionaFaye Posts: 72
    edited 01/24/2019 - 2:03 PM

    Hello!  I just learned on Monday I need surgery and there is no time to waste. I'm scheduled for February 13th.  From what I understand they plan to do a posterior fusion of my c3-c6, could also include my c2 once they get a look at it.  I'm told I'll need the neck brace (even in the shower) for 3 months.  I have myleopathy (?) or myopathy,  foraminal stenosis.  Forgive me if I get things confused...this is all so new to me.  Had I known they were going to plan my surgery at that time I would have brought my DH to the appt for him to be my ears and memory.  I have been dealing with this pain for nearly two years with little results so, I didn't really expect the Dr. to say "surgery STAT" !

    I also have Lhermitt's Phenom & Fibromyalgia.

    Is there a thread on this site with definitions for the abbreviations used?  I'm not familiar with the ACFD...etc. jargon.

    I hope all of us Febbies have successful surgeries and recoveries!

    ~Fi

  • memerainboltmemerainbolt IndianaPosts: 4,557

    FionaFaye!
    Welcome to Feb. Surgery Buddies, we are so glad to have you here. Both of the links Ron sent you will be very helpful in your understanding medical terms better. If there is anything else you need just let us know.

  • Dear Fiona, Nikki and Amanda,

    I am joining you as well. My surgery is (finally!) scheduled for Feb. 14. This will be my second single-level lumbar fusion, but this time they plan to remove and replace the hardware in there already. I am plenty scared, but my disc above the fusion blew so, like Nikki, I have that bone on bone pain. 

    I am 45, have three kids ages 9-11. I have spondylolisthesis that was fused in-situ 12/2015. My new surgeon thinks the problem is that since then I developed a hyperlordosis, so he is going to be carefully realigning that. 

    Glad to have some friends to go through this together  


  • memerainboltmemerainbolt IndianaPosts: 4,557
    edited 07/31/2019 - 11:30 AM

    momdown!
    welcome to feb. surgery buddies!! i am so sorry you are having to go through this again. hopefully this time you will fuse and fully recover.

  • Hello! 

    Glad to have found this sight. I have surgeries scheduled  on February 5th and 8th. Although I cannot recall the name of my surgeries, I do know what they are doing and where. The first one entails anterior T1-C3. I remember being told the discs are removed and replaced by something from a cadaver. A cage is built around each and then screws and a plate (maybe another word was used) is positioned for stability. Then, the second surgery is the same, but posterior T1 or T2 - C3. The thoracic will be decided during surgery. I’m assuming this is the spinal fusion in which many others have mentioned. Yet, when I look up its definition I don’t see mention of the screws and plate. But, I’m quite obviously not familiar with medical terminology. 

    I’m 47 with three children (18, 15 & 12). Naturally, my family wants me to stay positive so I’ve not fully verbalized how frightened I am. Reading through other posts, it is comforting to hear from others with similar surgeries.  I do not have dramatic complications in my life from my spine problems. But, I do have challenges and pain. The only recollection I have regarding the source of this damage to my spine was a wreak 27 years ago.  I’ve no memory of a time without neck pain  

    I look forward to reading more on this site in the days to come. But, wanted to ensure I posted here since my surgery dates are quickly approaching.

  • Hello! 

    Glad to have found this site. I have surgeries scheduled  on February 5th and 8th. Although I cannot recall the name of my surgeries, I do know what they are doing and where. The first one entails anterior T1-C3. I remember being told the discs are removed and replaced by something from a cadaver. A cage is built around each and then screws and a plate (maybe another word was used) is positioned for stability. Then, the second surgery is the same, but posterior T1 or T2 - C3. The thoracic will be decided during surgery. I’m assuming this is the spinal fusion in which many others have mentioned. Yet, when I look up its definition I don’t see mention of the screws and plate. But, I’m quite obviously not familiar with medical terminology. 

    I’m 47 with three children (18, 15 & 12). Naturally, my family wants me to stay positive so I’ve not fully verbalized how frightened I am. Reading through other posts, it is comforting to hear from others with similar surgeries.  I do not have dramatic complications in my life from my spine problems. But, I do have challenges and pain. The only recollection I have regarding the source of this damage to my spine was a wreak 27 years ago.  I’ve no memory of a time without neck pain  I’ve had chiropractic care, PT, Tens, orthopedic massage, and a few back and spine doctors. June 2018 my symptoms increased and  began to impact all areas of my life  

     I look forward to reading more on this site in the days to come. But, wanted to ensure I posted here since my surgery dates are quickly approaching. 



  • memerainboltmemerainbolt IndianaPosts: 4,557

    MeMay!

    Welcome to Feb. Surgery Buddies!! Below is a link that will help you with medical terms.

    Understanding Medical Term
    There are also helpful links I have posted on page 1 of this thread, if you have not read them. 
    Take care and keep us posted on how you are doing.

  • Hi all, sorry you are all here but glad of your company.


    I just had the preop with my surgeon. So, my fusion will be T2-L3 with posterior osteotomies. He didn't tell me much tbh, I didn't like him much. I don't suppose I need to. I asked about revision surgery...He said 10% patients need it. Also 1:1-2000 get nerve damage. Apart from those downer, it sounds less onerous than I thought. Will be allowed to bend using my knees. Back to work after 6 weeks (I am staying off 12...He wasn't factoring in being a single parent!  I want the rest). 


    The only thing that worries me, is if it doesn't solve the pain. He said some of my pain wasnt obviously attributable to my back. I am going to work really hard at my recovery...walking and exercises, healthy diet etc


    Hope you are all holding up ok and not TOO scared

  • memerainboltmemerainbolt IndianaPosts: 4,557

    AmandaL
    Welcome to Feb. Surgery Buddies. What is the date of your surgery? Recovery takes time and patience and it's good to hear you say "I am going to work really hard at my recovery". That was the one thing I kept telling myself and I did just that. I did and no exactly what the doctor told me. And it paid off.
    Go back to page one (1) and click on the links I have provided, very good, helpful information.
    Take care and hope to hear from you soon.

  • Hi Mersin. Surgery is next Thursday, on the 7th. I will be pleased to get it done and get on with recovering. I find waiting really stressful. I'm trying to relax and do nice things, but it's all I can think about


    Bit disappointed, surgeon said he will be aiming for 50 or 60 degree angle. I was hoping for straighter

  • memerainboltmemerainbolt IndianaPosts: 4,557

    AmandaL
    Have you talked to your surgeon and asked him why only a 50 06 degree angle and not straighter? Maybe if you knew his reason you would feel better about it.
    Hang in there, we are all behind you.

  • He said it would put too much strain on the screws. I am at 95 degrees currently

  • memerainboltmemerainbolt IndianaPosts: 4,557

    So far these are the surgeries for February.

    2-05-19 - nikcanrn - ALIF-L5-S1
    2-05-19 - Memay - C3-T1 (second surgery on the 8th)
    2-07-19 - AmandaL - full fusion
    2-13-19 - FionaFaye - ACDF C2-C6
    2-14-19 - momdown - 

    If anything has changed or is incorrect please let me know.


  • azcoolmomaazcoolmom Posts: 18
    edited 02/02/2019 - 1:34 AM

    Hi Memerainbolt and all the February surgery buddies. I'm scheduled for 2 level PLIF L4-S1  on February 19th.  It stopped being optional when leg numbness and weakness became really bad. I've had 5 significant falls since Nov 1st and can barely walk across the room. The last few weeks I've had painful hip involvement with groin pain. The neurosurgeon believes it's due to the spondylolisthesis causing the muscles to have to work harder to hold the spine in place. He keeps saying that the spine is basically coming apart at the bottom. That the L5-S1 have already fused from the Ankylosing spondylitis and that has put stress on the L4 pushing it out and forward. I'm not really looking for back pain relief as much ad regaining the use of my legs, getting rid of the terrible muscle spasms and the wrap around hip pain. 

    I'm 63 and have lived a very active life. I still substitute teach, do volunteer work, and take care of my two grandsons, when their mom is working.  We live in Montana, have a hobby farm with chickens and gardens and love to hike in Glacier Park. Although I know I'll have to go easier after surgery, getting my mobility back is why I need this surgery. 

     With information I've gotten on the site, I was able to get a lot of questions answered. But there's always so much unknown. Especially with a recovery this long and painful. It's good to have others walking this same path, and willing to share their thoughts. 

  • memerainboltmemerainbolt IndianaPosts: 4,557

    azcoolmom!
    Welcome to Feb. Surgery Buddies!! I am so sorry you having to go through this. But you have a few good things going for you. It seems you have a good attitude toward your surgery and recovery, stay positive, it always helps in both. The fact that you have been so active will also help. I had lumbar, L2-L6, surgery when I was 60 and like you, was very fit and active. I stayed in rehab for a week and have always said that was the best thing for me. Just a suggestion for you but talk to your doctor about it.

    There are some links to very good articles on page 1 of this thread to help you get ready.
    Take care and keep us posted on how you are doing or if you need more information.

  • Hello AmandaL 

    I am a similar age to you and planning a posterior correction with an osteotomy either this month or next. Mine is likely to be t10-l3. Will you be posting about your experience and recovery? I would be interested to hear how it goes...

  • Hi Memerainbolt--

    My surgery on the 13th will be Posterior- Is the correct term PCDF?  

    This waiting part is SO hard and nerve wracking!  I posted a question regarding the incision.  I'm wondering if they'll have to shave the back of my head in case they have to reach my C2.


    I'm a mess. :#

    ~Fi



  • memerainboltmemerainbolt IndianaPosts: 4,557

    moulet
    welcome to the group!! surgery buddies is for anyone having surgery to post about anything pre-op and then about recovery. it helps everyone with support and their own experiences. let us know your surgery date when you find out.

    fionafaye
    yes, you are correct. a pcdf is posterior cervical discectomy and fusion. i know the waiting is hard but you need to find something to do. have you read the post-op list? there are things you can start getting together.
    post op must haves 
    ready for surgery? lets go over a few things
    this will get you started, let me know if you need anything else. about you hair, that's just it, it's just hair, it will grow back!! you might like it that short!!
    pamper yourself and take care.

  • Hello,

    I am 26 and am scheduled for an IDET in L4-5 on Feb 5th. I currently live overseas and will be recovering mostly alone, so I’m so happy I found this site. I’ve had low back pain for 7+ years and have tried every form of therapy you can imagine, including 5 nerve blocks that did nothing. This past year and a half the pain has been almost unbearable, giving me anxiety to leave my apartment. Because I am so young, my surgeon is suggesting this procedure in the hopes of putting off something more invasive.

    I am worried, anxious and excited. I would love a surgery buddy during this time!

  • memerainboltmemerainbolt IndianaPosts: 4,557

    trhall0811
    Welcome to Feb.surgery buddies. Good luck with your surgery today and when you feel better, let us know how you are doing.

    Today is also surgery day for Nikcanrn, AmandaL and Memay. Wishing you all the best of luck!!
    Please keep us posted when you feel better.

  • Thinking of Nikcanrn, Memay, & trhall0811. Wishing a day of reasonable comfort. AmandaL I hope you aren't too nervous today. I've got 2 weeks to cheer you on! Then I'm up. Hugs to all. 

  • memerainboltmemerainbolt IndianaPosts: 4,557

    Amanda
    Also wishing you luck on the full fusion tomorrow, the second part of your surgery. Hang in there, rest well and hope to hear from you soon.

  • Thanks for the encouraging words Memerainbolt! I actually thought I might be too old to have this surgery, and questioned whether I could just live with the pain and disability. After contemplating what life going forward could be like, felt this was the only option to keep my quality of life. I know I'll still have spine pain..but the weakness in my legs, poor balance, frequent falls, made me realize, I needed to listen to the surgeon. I sincerely hope I get at least 5 days post surgery in rehab. Since this is a VA surgery...they will have to approve that. And the VA often assumes we're tougher than what we are. We live more than 80 miles from the hospital, so I've got a long drive home, as well as a long way to go should I have difficulties. 

  • ArizonaAArizona ArizonaPosts: 166

    Hi,  Sandra,  I'm  back.  Now I'm waiting for the March Surgery Buddies.

  • memerainboltmemerainbolt IndianaPosts: 4,557

    Arizona
    Glad to have you here, you are always helpful to others. Are you having surgery in March? You had a nerve block injection in Jan., how did that work out for you?

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