So in addition to Psoriatric arthritis, bone on bone knee arthritis, and lower spine arthritis, my life seems pretty much over. At 56 I work ft, and have horrific anxiety and am increasingly acrophobia. I can’t last 10 minutes in a store, panic about going anywhere because I don’t know if I can walk the short distance from a parking lot to , say a restaurant. Forget going to a movie. The last one I want to I had to drag myself up the stairs and nearly passed out from pain and exhaustion. Playing thr Dr. referral game Rheumy sends me to one Dr. who sends me to another, and so on. “ Nothing I can do” is what they all say. I am on Enebral injections, naproxen, prednisone when I have to, and a half a hydrocodin a day ( now up to one a day cut in half a.m and p.m) My rheum insists I do a sleep study for sleep apnea. He thanks that is why I am exhausted. Right. Thanks now I have to go to meet a Sleep study doc for one appt and then go to a sleep lab for a miserable sleep study. Never mind that I suspect the exhaustion is from being in severe pain 24 hrs a day.
The Spine Specialist said there is nothing he can do - Maybe by try acupuncture, massage he suggested.
My Dr. who does Facet injections that provided great relief in the past told me ( after I waited weeks to get in and went over on my lunch hour like an idiot) that he could not do them that day as his “ radiation level was too high “ He also dropped the F-bomb while he was there, and when I asked him what I needed to do he just said” I feel you are questioning me! he slowly lowered the table and said “ I’m not going to do this, I am in a bad mood anyway today” and I was dismissed basically.
My orthopedic Dr. who I met with about a year and a half ago, (and had not seen since until the pain in my knees became so nausingly painful and debilitating) I made an apt with hoping he could do something, anything, and yes maybe now I would even consider knee replacement - walked into the room with a hearty hello followed by “ Well I tell you one thing, we can’t do surgery until you lose weight!” He literally did not even e even n look at me or ask why I was there! I’m a frickin human being! I took a half day off from work - wore one of my nicest outfits so he would see he would maybe speak to me with a bit more of a professional attitude ( in my warped pain, depressed, anxiety ridden mind) and instead was treated like a hog who eats cheesesteak sandwiches in bed washing them down with milkshakes. I actually have little appetite and live on a 399 cal frozen lunch, or cheese and crackers because my stomach is a wreck
He gave me two steroid knee injections as a consolation prize said he was going to weigh me and give me a pamphlet and he was gone. Oh I did ask about knee brace
He said don’t bother you can get one on line for $12 just as good, Poof- gone - gee don’t let me forget the Arthritis brochure you promised,: you know the one that looks like the 80’s called and want there brochure backThe one with the elderly couple looking like they were holding each other up. That is not confidence boosting brochure. Perhaps a bit more cutting edge? So now I told you I am crippled and can’t walk and spend every minute I don’t work, in bed,nothing you can do for now see you in three months when you lose weight, thanks I am so happy i came today.
Gosh, should I maybe take up runnung, tennis? The struggle to get up blow dry my hair and get dressed each day while crying is as much excercize I I can ,manage- gee bet the weight will vp come pouring off now.. Thank you for that helpful insulting suggestion and for taking ten minutes with mr. I guess I had nothing to discuss after all. You one word answere and dismissiness wth no suggestion or hope left me in tears Oh sorry that was when you were injectng my knees with steroids and asked if we were going to our Florida trip rhis year. That’s when tears came. It was something we lived for each year our trip to a lovely resort in aFt. Myers. It was our once a year happiness. I look forward to it as it gives me something to look forward to - and amazing joy. Not this yea
So I have been humiliated, dismissed, ignored, blown off, embarrassed but not helped. And now here it is just before Christmas and I literally cant get out if pain. I’ve had to shop pnline and amfinding it hard to oncrate I missed the amazon cutoff as I was driving nyseif crazy with indecision and just want this over. So tired as usual,