Could it be Fibromyalgia?????

Hello i am a 26 year old male , one morning i woke up and both arms and legs felt weak, i will back the story up, before that day i worked out 4 times a week, and i work a office job but had a seasonal job 2 weeks  before i the weakness started that i had to stand and run and jump a lot as a entertainer, so i woke up and felt weak in both legs and arms, i thought maybe i just over did it at the gym so the pain didnt go away for a week or so, so i didnt work out, then i dicided to go to the doctor and at first they blamed it on working out and they checked my vitiam levels and my vitamin levels were alittle low(runs in the family) so she prescribed me vitiam d, took that for about 3 to 4 weeks then didnt notice a difference in pain and i woke up another morning and notice my muscle was twitching in my my right ab, i called the doctors office to see if this was a side effect of the vitiam d and she said no, so i went back there the next week because the twitching started all over my body arms, legs, back, butt, face, neck, she then question me about stress i told her im not really stressed as i have a job i love and a wonderful gf, she wrote me a prescription for anexity meds, well i noticed the pain getting worse and i felt tired alot and pretty much the constant pain areas were in my arms and legs, but i would have pains that come and go in one knee, wrist, evrn my jaw, and  even my hand seems to cramp and fingers randomly hurt especially when i use them, at this point i completely quit working out and still weakness and pain! So i called the doctor agian 3 months or so when it started and she said well we cant do much here so reffered me to a rhematoligist, well had to wait 3 months, still having pain in same areas, still  muscle twitching all over!, stiff neck lower back pain and random tinggling in feet and legs and hands, get minor headaches a few random joint pains and feel tired a lot, like one time i went out with friends a walked alittle bit then normal and the next day i woke up and it felt like 10 pound weights were attached to my feet but lightned up throughout the day, fine the day came to go the the specialist, was excited to figure out what was wrong, well by my suprise i got there and littarlly felt rushed she asked me my symptoms  and then had me pull on her arms and stuff then drew blood and urine sample and xrays of my neck and back and said see you in about 2 months , well im about a month away and finally got a email about my results for the test and found nothing, anyone else have symptoms like theses? Its really frustrating. Thank you for reading this whole post



  • LizLiz Posts: 2,041
    edited 07/23/2019 - 1:08 PM

    hello allenda 

    welcome to spine health

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  • memerainboltmemerainbolt IndianaPosts: 4,557
    edited 07/30/2019 - 2:44 PM


    Your post was a little hard to read as you did not use any punctuations or paragraphs.
    What kind of doctor were you seeing? 
    Good luck and we hope you find an answer soon.

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  • i Prefer mri’s Not x-rays.

  • The specialist i saw was a rheumatologist and sorry for the bad grammer.

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  • Anyone have similar symptoms?

  • Update, i got a call from the Rhumtatlogist i'm seeing, she wants me to get a MRI done the 28th and then regroup with here the 5th of Feb. Really hoping the figure out whats wrong with me, and hopefully it's able to be fixed or or treatment that will help, i will keep you all posted

  • all those symptoms mimic a lot of conditions. I am still trying to figure out a lot of my symptoms to this day.have seen two GPs, Chiro, Neurologist, Pain Management doc, ENTs.

    do you get eye symptoms? how is the balance? sorry I ask everyone....

    I have done Xray, MRI, MRA and next I will get EMGs this month.

    I can relate to many of those symptoms and especially the fatigue factor...

    it is frustrating to wait for so long and moreover when the doctors think you're making things up and dismiss you with a "you're fine".

  • Hi allenda
    Sorry you are having to deal with what you are it can be difficult to get a diagnose. But don't give up and don't take the "its all in your head" ever. I have Fibro and yes some of the symptoms suggest it but so many other things can show that too. 
    If I was you I would continue to see a different doctor till you get the answers and a plan for help.
    Do you keep a journal at all it is important to write down what if possible makes it worse or better if any. That way you have good information to discuss with your doctor. 
    Let us know what you find out and best wishes.

  • They referred me to a neroligist on Feb 27th, i asked her about fibromyalgia  and she said we can look into that after the neruligist test

  • I’m three years out from a sudden lifting injury and they still don’t know what my problem is definitively.

    So please keep pushing forward. I hope to get more imaging myself in the coming weeks.

  • memerainboltmemerainbolt IndianaPosts: 4,557

    Thank you for the update, just keep us posted.

  • allenda  did they do EMGs? I have EMGs done and found nothing causing sever symptoms; docs say EMgs give what MRIs dont give. I always ask, but how is your balance?

  • As far as I understand from my Neurologist, EMGs only test large fiber nerves.  In order to test the small fiber nerves you have to have a biopsy where they take a sample from your thigh and your hand. So, according to what he told me, just because the large nerves were mostly intact, the small nerves could be shot and the EMG wouldn’t show it.  

  • To expand, I’m having a lot of serious issues with my hands and feet. A lot of pain. A lot of burning, tingling, nerve “zingers” like lightning shocks down my wrists into my fingers, and a complete loss of the ability to determine heat or cold with my feet, and parts of my fingers. Even something as simple as washing some dishes can lead to burned fingers. I’m an artist, and I can no longer hold a pencil properly. I was hoping the EMG was going to show something, but it wasn’t conclusive. That’s when my Neurologist told me about the biopsies, and send me to have my brain MRI’d. Still waiting on the results of that...

  • Alydara i see you went on a few paths. i did not know about the small fiber nerves. interesting, and that would explain why the symptoms don't really match the EMG results in many  cases. I have had MRIS and MRAs of brain and neck..nothing there luckily.

    going to a rheuma next...although doc thinks it is just to rule out. my balance is getting a bit worst and i had to keep calling the doctors who said to give it time to heal, but nothing is getting better in those regards...even light sensitivity is worst.  hope all works out for you.

  • Thank you,  Hedavs,  I sure hope you get sorted out! Light sensitivity is no fun, and having suffered from vertigo, I fully understand how bad “Bad” balance can take you! Ugh! Reeling around like a drunken sailor is no fun, unless, of course, you’re a drunken sailor. But all jokes aside, no, balance issues stink and you have my sincere sympathies. There have been times where I have been unable to get up from bed due to vertigo, and lying in bed with ones eyes closed all day is boring. The MRIs of my neck and brain were clean, aside from  some of the Mylar being gone, but at my age that’s normal I guess. I still want to have that small nerve fiber biopsy test done, but they can’t do it locally. I’ll have to travel. Not up for that right now. 

  • Alydara thank you for the sympathy. I sure hope  I sort it out, going to Rheuma doc sometime this month....but it's for rulling out...I have been like this for a long time and I just fear things get worse. if something got better is that I dont have extreme pain anymore. here is to good hope for all of us.

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