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Night is horrible vs daytime

It has been four months since my condition began and has intensified.  I was referred to an Orthopedic Specialist.  Other than getting an x-ray of my hips and MRI that led to a steroid injection (which didn't work) it was a waste of time not to mention the Dr. had NO beside manner, a veterinarian would have been more compassionate.   There is a narrowing in the lower vertebrae causing inflammation and one would think in the 21st century the medical field can perform transplants, etc., can't help those of us who deal with Sciatica. 

My tailbone can be very painful followed by numbness in my genital area (now for two months) and horrible nerve pain radiating down my legs to my toes. Ouch!

I have come to the conclusion after doing a lot reading, this is very likely a lifetime problem that cannot be fixed. At first I thought, can't live like this, it has affected my mental and physical being, a feeling of hopelessness.

Nights are the absolute worst and I dread them as I know what I'm in for.  It took me three hours after retiring last night, getting up and down walking, walking, walking, waiting for my leg to stop drawing up from spasms over a hundred times in those three hours. I'm paying for it this morning, my leg and foot is weak and ever so sore.

Trying different things for pain, CBD oil and essential oil combinations for sore calf.

Any thoughts are appreciated as it seems we're on our own to figure out how to have a better quality of life.


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Comments

  • nutcase007nnutcase007 United StatesPosts: 953

    Please, so your sake, don't give up looking for a diagnosis.  Maybe, it would be worth it to get a second opinion.  Have you been able to obtain any sleep aids to help you get some sleep?  Lack of sleep is a downwards spiral that takes time to recover.

     There are other specialists that be worth considering, especially a rheumatologist.  They are normally are lot more compassionate and also are known to find conditions that can improve quality of life.  Your pain could be referred pain or a combo of referred pain or neuromuscular pain.  My initial diagnosis took ten years. 

  • I would definitely get a second opinion from maybe a spinal specialist, I think an orthopedic doctor deals with large joints not the intricacies of the spine. At least a pain management doctor if you don't already have one or as mudflap suggested.  Muscle relaxers might help those cramps and spasms and help you sleep. I know nights can be the worst! I have sciatica also the and although I'm not crazy about taking them, muscle relaxers and a mild sleep aid help to calm things down. I also listen to music, guided imagery, audio books, anything to keep my mind off the pain. If I can lay still long enough, things calm down and I only get up a couple of times a night. Don't give up looking, there are people out there who can help you but you do have to be persistent. Keep us posted please. 


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  • challengercchallenger Posts: 1,253
    edited Today 9:53 AM

    Retired66

    Welcome to the Veritas Health Forum

    Learn How to Use the Forum - Take the System Tutorial

    The main thing is, do not give up, you have to keep looking until you find a solution. Good luck and keep us posted on your progress.
    Chip  

    challenger
    Veritas-Health Moderator


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