I am new to this group and feel very fortunate that I found it!! I'll try to keep my story brief, I was diagnosed with scoliosis at age 16, but did nothing about it. I had my second child at 40 and am now 58. After my daughter was born, my back really began to hurt so I sought out a Pain Management doc that gave me numerous shots for several years. It worked for awhile but then the shots became useless. I ended up having an L-4 to S-1 fusion in 2010. My back was great for about 4 months until it really began to hurt and I had pain shooting down the left side of my left leg. The doc told me that my fusion was healed and if I had pain I needed to go back to my Pain Management doctor. The Pain doc gave me injections over the years, prescribed pain meds that didn't help much and I even had a TENS unit and morphine pump installed in my body. The TENS unit didn't help much and the Morphine pump helps a little bit, but I still ended up on disability in 2013 having been diagnosed with FBSS, Failed Back Surgery Syndrome.
I have a pretty high tolerance for pain. You can't just stop living. I force myself to get out of the house and run errands. I do my best to keep my home neat even though it hurts. I keep the pain mostly to myself. I try not to complain because I know my family would just get tired of hearing me gripe about how much I hurt, but the pain would get so bad that I would actually pass out and have broken my arm twice from hitting the ground.
In the past year and a half, the pain has gotten worse so I began the search for a new Neurosurgeon. I went to 3 different docs and got 3 very different opinions. One doc told me I needed to be fused from top to bottom, another told me that I needed an L3-L4 fusion and the 3rd said I needed to have a T-10 to S1 fusion.
I am so confused and I'm still weighing my options. I will be completely honest too - I am more than than a bit scared. I have another procedure on 3-27-19, and I need to make a decision pretty soon. I just hurt so much and need to get this taken care of.
Thank you for letting me vent. Like I said, I don't complain much, so this a good place for me to be honest and get some good solid advise. Any and all comments are welcome!!!
Thank you so much!