Just diagnosed with adhesive arachnoiditis. After having 6 spine surgeries over the past two years and with the pain getting worse I decided to change doctors and get another opinion. Unfortunately recent MRIs didn't show the problem so a myelogram was done. ( Not the best thing to do with this condition) The test showed the dreaded nerve clumping and the reason for the unrelenting and worsening pain. Two years ago I was happily retired and able to do anything, in good health. Now, I have lost a good 10 pounds due to no appetite and the never ending pain from my neck down to my feet. They don't have a pain management appointment until mid August and I have to rely on my PCP for pain meds which of course come with their own issues.
Has anyone out there researched or know of someone who tried the stem cell therapy that is available.
I have read about a clinic in Arizona that has treated this disease with some success, including a doctor who for many years was in a wheelchair. This treatment is not yet FDA approved so insurance will not cover it, but although it is expensive it seems to offer hope for remission of the inflammation that causes the nerves to bind together. Any other treatments or meds that you have had success with I would greatly appreciate hearing about. I am trying to gather all of the information I can before my appointment.