Ziconotide. He already has a SCS installed before that’s stopped working.
My husband is getting a pain pump installed in weeks with
A little background on my husband. He had all together 6
abdominal surgeries throughout his life, which result in a big mess in this
intestinal system. He have long-term, refectory abdominal pain and the surgeon told
him surgery cannot fix this pain . The pain is in the nerves and we have tried nerve
block - works for about 2 years
SCS machine. Worked about 9 month,
then the pain came back stronger. It seems SCS only covers the surface
nerve pain where the scar tissues are, but the pain moved deeper inside in
belly that every time there’s any bowl movement the pain will be constant.
Multiple Nerve ablation with alcohol – increased pain afterwards since the nerves
are all fired up; didn’t relief the pain after the nerve calm down as well
The pain doctor has suggested pain pump then. We have tried
three trails with different medicines. Morphine trail put my husband to a bad allergy
reaction with rash, stopped trail immediately. Then we tried a different drug
cocktail using mainly Fentanyl , the pain is controlled but Fentanyl is causing
extreme fatigue that he can barley move
Then it comes Ziconotide. My husband has tried a 5-day trail
with Ziconotide and the result is magical. It covers 100% of the pain, no side
effect on him at all, and he has been eating three meals with regular bowl
movement. It is no brain that we WANT this. We live in Singapore and it is the
first time the doctor use this drug and he is very cautious with it (which
making us even more nervous). We’d like to know some information about people
who use Ziconotide pain pump in this forum:
Does anyone have both pain pump and SCS machine? R u running both or it’s ok to
take the SCS out?
Doctor said Ziconotide will expire in 84 days, but I noticed somebody else on the
forum said he can refill it every 6 month. How often do you have to do to
refill your pump?
Does anyone has experience with leakage / infection with the pump? How fast do
you have to get to a hospital if that happens (in case we are somewhere
that’s not close to a hospital). It is lethal?
Is your pain pump still working? How long you have it now?
Thank you for reading and your experience/ advice will be