Hi, I hope everyone is doing well. I have not posted in quite a while. Ran into some bad luck. I had a Cauda Equina, a Vertebral Colapse, and a serious case of Flat back Syndrome.needing surgeries. I became septic, they went in again & I was home on antibiotics. This was 12 spine surgeries none of which were voluntary for me. I am 66 years old. Have been on opiates for the last 10 years & off & on the 5 years before that. Am also on Gabapenten 800 twice a day, Topamax 125 twice a day, Wellbutrim 125 & Thyroid meds. Was on Morphone 60mg BID & Dilaudid 2-4mg for breakthrough (never took). My Cervical Spine is fused from C3 to 6. I am fused from T8 to my SI joints in my Pelvis.
I have pain. I will always have pain. My spine is deformed. My head is still bent forward.I have severe kyphosis. They would have to crack my already fused cervical spine & place rods in the back to get my head up. I need an upright walker to walk outside the home. I was the the beach for the first time in 4 years & able to walk & so happy. My MRI is not readable to to infarcts but my problem is muscle atrophy, Am in Aqua Therapy. I want off these meds. I asked the pain management doc to decrease the Morphine to IR 40 mg BID. He said no. He said to take one 60mg a day. with 2mg Hydrocodone's for withdrawal. I started a week ago & am suffering, terribly. This is not the way to do it. I know that. I was addicted to potato chips. You can't tell your body - you can have potato chips 12 hrs a day, the other 12 - no. The withdrawal is terrible. I am crying, sick. I am taking 2 - 2mg dilaudid 6 hours apart. I did an opiate calculation & I am down 16mg but, this way of coming off Morphine is wrong. I know it. I am ready to sign myself in somewhere just to get relief, but I am afraid as I am an old, disabled lady. This doctor has a racket. Everyone at his practice is involved in a legal dispute & he does depositions, all day long. I am plain Medicare. He has no interest in me. No lawsuit. My surgeon is away till August. I have an appointment when he returns. He is the head of the large University in the City. I can ask if they will manage my meds for 90 days or send me to someone who will . But, in the meantime? Any thing you did that helped you is appreciated.. God Bless you.