I am 29 years old was diagnosed with AIS at age 14. I have upper thoracic scoliosis with a 47 degree curve that has progressed from the 38 degree curve that I had 7 years ago. I’ve experienced significant tension headaches and bilateral temporal and facial pain for several years in addition to the baseline upper back discomfort. I’ve also experienced worsening, and now constant neck muscle tightness/spasm for several years. These problems are typically worse after sitting all day. They also seem to be worse when I wake from sleeping all night at which time I sometimes feel my arms and legs also seem weak. I also have unexplained fasciculations in both calf’s. A recent MRI of my cervical and thoracic spine did not reveal any impinged nerves
I’ve tried intensive physical therapy (schroth method included) several times in the past without relief. I’m unable to exercise due to worsening neck and facial pain for several days following exercise. I also tried yoga for a bit in the past and this did not improve my symptoms. These problems seem to be exacerbated with sitting all day for my job. I stretch for an average of 3-4 hours daily for over 2 years with minimal relief.
I do have bruxism, I assume related to the postural discomfort from my scoliosis. I wear a mouth splint and I’ve tried muscle relaxers with minimal relief. I also tried Botox injections to my masseters to see if my symptoms were primarily from bruxism or scoliosis related. This also did not improve things for me.
I am wondering if anyone else has experienced similar symptoms and if you have any suggestions. I am strongly considering spinal fusion with the hope that this is all related to the postural discomfort of my scoliosis. Any help would be much appreciated.