(I already had a post here but it was erased by someone so here goes again with greater input since it’s been almost three months post surgery)
Back and leg pain began in January 2018, had MRI (confirmed herniated disc L5S1 on the right side) took meds, did physio and seemed to get over it by June. Dug a hole for my dog on all fours and on the 10th of June I was broken. Rushed to emergency but was cleared to go home with medication. Had probably the hardest 40 days of my life with sleepless nights and excruciating pain. Finally got epidural on the 25th of July and things sort of calmed down. Pain was there always though. Spent most part of the winter with pilates, walking, exercising and was almost good to go on February. Then I played some 95% painless three or four rounds of golf (which I painfully regret) and from the beginning of March my right leg is a neurological mess. Muscle spasms, calf cramps, electric shocks, numbness, atrophy etc. It was so bad that I just laid on my back or stood up straight. Anything else gave me symptoms. Finally I had a microdiscectomy on the 25th of June where the neurosurgeon who operated did so for three and a half hours because the disc had calcified around the nerve and was damaging it as he said but everything went ok according to him. Woke up from the surgery and nothing changed, to be honest the symptoms were a bit worse and in the 80 days that followed until today remain so. I have good days where I think I’m recovering followed by bad days where I ask my self if I actually had surgery. My body is as stiff as it gets, I cannot move my legs in bed without getting all sorts of dysesthesias and when I walk I get an audible crack each time my bad leg goes forward. And I still cramp at any given moment. Now I know that nerves heal slow (I’ve read a lot in this forum and the surgeon told me so) but I haven’t had a single day of total relief since my surgery and my mental state was falling apart. Something inside me didn’t feel right whatever I read and whatever everyone was telling me. I was swimming, I was walking, I was being careful but nothing seemed to change for the best. I was slowly losing my mind. Until I decided to get an MRI with contrast on my own without even asking my surgeon. I paid for it and I got it on the 3rd of September and guess what? Three neurosurgeons (not mine) said there is a disc fragment on my nerve. Now one of them said reherniation but he wasn’t aware that I wasn’t symptom free not even for a minute post surgery. Now here’s the tricky part. Another neurosurgeon (a good friend of mine who unfortunately doesn’t do backs but hands microsurgery) who works at the same hospital with my surgeon looked at the MRI, told me there is a disc fragment on my nerve and somehow found out that during my surgery the surgeon didn’t cut all the disc that was strangling the nerve but left some disc because he was afraid he would damage the nerve and closed me nevertheless. A piece of information that neither he or his assistants thought was important to mention. I was told by them that everything went ok and was sent on my merry way. Right after surgery, at the one week appointment (assistant showed up) and at the one month appointment with the surgeon who actually charged me for it!
I’ve been having light physio everyday with some results but there are days like today that I’m having lower back pain on both sides, right leg symptoms as always plus mild left leg symptoms.
I’m on Lyrica 150mg per day and lorazepam to sleep due to the stress this has put me under although since I had the MRI and was sure about what is going on my mind was put at ease that I was not crazy after all the past two months. I was operated upon badly, and left to believe that I was healing under the very slow rythm that the nerves heal.
I have booked an appointment for Tuesday with my surgeon where I’ll show up with the MRI  I’m not sure how to handle this. Even if he gets to admit that he closed me unfinished what will he say about not telling me?
What will he have to suggest from now on?
Will it be a revision surgery? Like I’m having it with him again!
However things go on Tuesday I’m done with him.
But what does the future hold for me? It’s been 21 months now living with this plus a botched surgery. Where do I go from here? I haven’t given up. I’m going to physio, walking, working, living my life as best as I can but nothing is being resolved. There is always something inside me aggravating the nerve (and as I said recently on the left side as well).
Sorry for the very long post.
Edited by ~Liz Veritas-Health Forum Moderator Removed doctor bashing]