Hi Community, so grateful forums like this exists. I am a 52 year old male and have had low back issues since childhood. I waited as long as I could before having my first Discectomy and Laminectomy at L5 -S1 at age 47. About 6 months later I had a fusion at L5 -S1. Still having pain and seeing many doctors I finally was told my last fusion had loose screws and no bone growth over fused areas as well as spinal stenosis. A revision surgery at L5-S1 and added L4 to the fusion. Upon awakening my first memory was a intense burning in my right foot. The doctor said there may be an issue a but hoped everything would be ok. This new foot pain was more intense than anything I’ve ever experienced. I didn’t know until recently surfing the internet, I found my doctor published a study below:
Above, my doctor described in more detain that the bone spacer sheared off and went into the L5 nerve root.
Went to ER 7 times in 10 days. Finally ER did CT scan and said you need surgery at once. The next afternoon I had a revision that did help some. I had less if an electric sensation but still in horrible pain. Pain doctor did 9 nerve blocks and 2 steroid injections but nothing helped. After trying many meds I settled on Gabapentin, nortriptyline, and percocet all together maybe helped 30 percent. My pain doc said there is nothing more he can do and sent me back to surgeon. Surgeon said everything looks fine. I called another Pain doc who said spinal cord Stimulator will help me. He also cut my opioids off completely which pretty much has made me bedridden. I was very hopeful learning about spinal cord Stimulator and went with Boston Scientific for trial July 1, 2019. Trial wasn’t able to get good coverage on foot but did really help leg pain. I went with permanent Stimulator July 15, 2019. Due to lead migration a revision was done September 23, 2019. On September 26, the Boston rep asked why I wasn’t using it. I said I felt it best to wait because turning it on ADD an inconsistent current whenever I move the slightest. She went ahead and was programming when all of the sudden it felt like the Stimulator went on at 100% current. My legs stretched out from my chair and knocked me to the floor. I didn’t have any control over my leg muscles. For about a minute I flopped around screaming as loud as I could scream. Oh my God that hurt. After a while of not getting the Stimulator off, I thought I was going to die. I wanted a knife to cut into my scar a cut the wires. It was a horrible experience. Finally the Boston rep was able to shut it down. I felt the current instantly stop. Boston says the Stimulator was off and claims I had a leg cramp. Later she claims it was residual energy. Next I thought she was going to claim swamp gas. I know this is a rare event but believe me I was being electrically shocked right to my nerve directly! I requested the log files be sent to Boston’s engineers. After calling Corporate, she now agrees. Has anyone else had a a runaway shock or had difficulty turning the unit off. It has caused more pain in my legs and a tingling patch next to my sternum. We agreed to wait 2 weeks before trying again. I want some assurance that this will not happen again and if it does happen I want to protocol in place to be able to shut it down.Edited by Sandra for external link