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Cervical stenosis and L4/L5/S1 bulges

angie29angie29 Posts: 98
edited 01/15/2020 - 5:29 PM in Chronic Pain Buddies Forum

Anyone who wants to talk, I'm here, as are many. 

Wonderful site to make friends and get support and advice. 

I have multiple issues,  cervical stenosis and lumbar disc impingement.  Gastro issues, anxiety,  depression etc.

Feel free to chat about anything and everything. 

We understand. 

You are not alone. 


Best wishes 

Angie

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1

Comments

  • memerainboltmemerainbolt IndianaPosts: 4,137

    Angie

    Welcome to Pain Buddies!! Hopefully more members will join soon.

    You are like I am, so many issues. As a matter of fact, when I first joined the forum and listed everything that is wrong, one of the then moderators told me if I had all of that I would not be walking or even moving. I was so hurt. But I asked him, so you think I'm making all of this up and lying. I never backed down. But he did and apologized.

    Now, I am so glad we have the support from each other like we do. We all have so much in common with just the medical issues. Who is taking or has been taking a lot of meds and does not have gastro issues? Or anxiety and depression? Just to name a few.

    Like Angie said, you are not alone.

    Sandra
    Veritas Health Forum Moderator



  • @memerainbolt

    Hey Sandra  :)

    I'm so sorry you had that experience,  but I absolutely can relate. In fact I've had it from doctor's and PT'S too. It's so hurtful and upsetting to be not believed and made to feel like it's "all in your head". 

    I've had to fight for around 17 months with GP'S to get tests because i knew there was something wrong, but she would not believe me. 

    Eventually an out of town doctor sent me for an MRI and orthopaedic appointment which revealed my not so imaginary issues.

    I get my first neurosurgeon appointment next month, 17 months in. But that's the NHS I'm afraid.

    I'm so glad you didn't back down and they apologised. If only they were in your shoes for a few months...

    I've read a lot of your posts and you sound like a strong and formidable lady who's been through so much but you still remain positive and you help and support many people here. 

    Bless you.

    I hope more folks join in and we can support each other. Rant, talk about what helps or doesn't. Anything and everything,  that's what buddies are for :)


    Take care 

    Best wishes 

    Angie 



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  • memerainboltmemerainbolt IndianaPosts: 4,137

    I did not realize you had to deal with the NHS. Where do you live? I have 2 very good friends, both former moderators that we stay in touch. One is from Canada and the other in England. The stories I've heard about their healthcare is heart breaking.

    Thanks for the sweet words. I enjoy being on the forum. I might be a moderator but I am a member first, just like everyone else. I always feel like I have so much more to give because I get so much every day.

    Spread the word about this site, I think we will see it grow. Thank you for everything you give to the forum.
    Sandra

  • My back pain started 12 years ago with an inflamed ligament or muscle causing sciatica. My mri showed early disc degeneration. I had a job with heavy lifting and repetitive movement. 2 years later I moved. I have had chronic migraines for 30 years but they have decreased. Then my neck went bad with a pinched nerve that lasted for 3 months. That was 8 years ago. My new dr. kept me on headache medicine Fioricet and added tramadol.An xray showed osteoarthritis. The last 6 years have been a struggle with worsening pain. My dr. never diagnosed me. Hypertension came and severe anxiety. I changed doctors three times and they just continued to give me same meds and sent me for psychiatric exam. Depression and anxiety,,and more meds. My dr. has requested an mri for lumbar and cervical neck and insurance has denied it 3 times. I have no real idea what is wrong other than disc degeneration. It’s been 12 years since my mri and my spine pain has increased. My last mri denial was in November. I am sorry for all the rambling but I needed to tell my story to someone.Thanks chronic pain buddies. 

  • @memerainbolt

    How are you today?

    I live in Scotland. Beautiful country,  terrible healthcare. :|

    Whereabouts are you?

    You and Chip, amongst others, make such a difference to help others, despite being in pain yourselves.  

    It's hard, but we live to fight another day my friend, and we try to make the most of it, however we can manage . 

    Of course some days it's slightly easier done than others. 


    Take care of yourself 

    Best wishes 

    Angie 



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  • @nancyann

    I am SO sorry to hear of your pain and struggle with your doctors. 

    When I was in my 20's I had back pain, was tested and diagnosed with degenerative disc and margin disease. I also did lots of heavy lifting and repetitive tasks. 

    The pain came and went over the years. Various meds but nothing more. Until things got real bad around 17 months ago. I'm 45.

    I had to fight for tests, and I'm so sorry you're going through the same ordeal only worse. 

    You don't have a definitive diagnosis,  an x-ray will only show so much, you NEED an MRI. 12 years since having one is a long time.

    If in fact you do have arthritis you need a rheumatologist and the proper meds to treat it.

    Why are they denying you one, I don't understand?

    Can you get an advocate to intervene?

    It sounds like they are trying to make you feel like it's all caused by anxiety and depression...DON'T let them. You know your body and your pain. 

    I'm really sorry.  But do NOT give up. You must keep pushing for answers. It's hard when you're tired and in pain and being refused, I do understand,  so many of us do.


    How I wish these doctors and specialists lived in our shoes for a few months.....


    Take care and stay strong,  keep fighting. 


    Angie




  • memerainboltmemerainbolt IndianaPosts: 4,137

    Angie

    Scotland, beautiful country!! I live in southern Indiana, in a log home in the woods with no neighbors. Except in the winter, most people here know I sit on my porch and get my inspiration for the forum. I never know what animals, bugs or birds will come for a visit. Plus the fish jumping in the pond. Very peaceful. 

    nancyann

    If it were me, I would get another opinion or 2 with diagnostic testing. Don't give up, there is a doctor out there for you, you just have to find them. At one point, many years ago, I went through 17 doctors before I found one that not only listened but found some of my issues. I agree with Angie, and I would do it if I had to, but find a healthcare advocate to help you. If you can't, we will help you with questions for your doctor's. We have some real good articles that covers this. I would even call my insurance and ask them why it keeps getting denied.

    We are here for you and each other.
    Sandra


  • Thanks Angie and Sandra for your thoughts. I have a 6 month check up with my primary next week. I will ask him what’s going on with insurance. I spoke to my healthcare provider and they told me they will be in contact with my dr after they review my physical therapy report. Their first condition was to try physical therapy and pain meds. I am ok with my meds but my dr. needs documentation and diagnosis to continue to prescribe fioricet and tramadol. I don’t think I need pain management at this point. I just want to continue my meds,no increasing doses and get a definitive diagnosis. Will I get worse ? We’ve always bought our insurance from the same carrier ,but alot changed with Affordable Care Act. I had to find a new dr. My dr. has to get their authorization on alot of diagnostics. What types of specialists treat disc degeneration? I tried a neurologist but he only treated migraines. Thank you so much for your support. Nancyann 

  • Angie you are in Scotland? A beautiful country from what I’ve heard. Sandra is in a log cabin in woods. We raised our girls in the Pocono mountains in Pa. we had a chalet style home in the woods. I grew up in New Jersey just outside of New York City. Crowded and not much nature. We now live in the Mohave desert in Southern Cal. Dirt road and big beautiful blue skies. Love the peace and quiet here. Anytime you need an pain buddy, I hope I can help. Nancyann 

  • @memerainbolt

    Oh my, that sounds like my dream home! Any chance of a swap?  ;) 

    I'm so jealous. I always wanted a house in the country. Idyllic,  peaceful.  I can just imagine you on your porch <3 

    I love animals and nature. I live in a town about 35 minutes from Edinburgh,  along the coast. We do have some beautiful scenery and views. 

    @nancyann

    It sounds glorious where you are too! Scotland is beautiful but the weather is probably not quite as nice as California! lol. You've been around, which was/is your favourite location? 

    I've lived in the same State/Region all my life.

    I'd love to visit the States one day.  So much to see and do, such variety and a mixture of people and accents!

    I have a friend that used to live in the UK and now lives in Texas. She loves it. 


    Thank you both, and likewise Nancy,  anytime you want to chat.

    Hang in there my friend. Like Sandra said,  and I am also experience,  it's finding that one doctor who gets it. Although I have cervical stenosis on the left, the majority of my pains are right sided, so let's see what the neurosurgeon says next month. 

    I have had right hip pain for 5 years now, unresolved and undiagnosed,  my CRP levels are elevated and my lumbar discs are bulging and I have a hiatal hernia and GERD.

    Apart from that, I'm good!! Lol  :D

    I think I need a garage and possibly some new parts and a full service!

    Take care 

    Angie

  • Angie -  I think we may be distant relatives!  I have a bit of Scottish DNA (mostly Irish though lol).  I visited Scotland about three years ago, what a beautiful country!  Oh,  I'm sorry about your chronic pain issues.  You've been so supportive and kind to others (including me) in these forums.  I was so HURT when the PT told me that it might be "all in my head!"  She just couldn't believe that her exercises weren't fixing my pain - and this was after only six visits!  I think I've been depressed most of my life, but we didn't get to talk about it openly back in my day (actually it's still not something people like to talk openly talk about).  Being in pain just makes this world all the more gloomier.  But I'm trying very hard to be grateful for little things that make me happy (like this forum).  

    @memerainbolt - thank you for the work and contributions you make as a moderator for this forum.  Sounds like you're living a peaceful life in Indiana!  I'm in a college town in Michigan.  I'm very fortunate in being close to excellent medical facilities (not that my expert docs have been able to stop the pain I'm in though).  

    @Nancyann I can't believe you've been denied a new MRI.  Argh, the insurance companies can be so frustrating.  And I'm so sorry to hear of the pain you've been in for so long.  I've only been dealing with this awful back pain for just over a year.  They kept telling me it was going to get better... but nope.  

    I'm hear to complain and hear to listen.





  • @mjcg

    Good to meet you my friend! 

    How are you feeling today?

    I also have some Irish in my family from my Mother's side! Whereabouts in Scotland did you visit?


    I'm sorry we had to "meet" here,  but take heart, you are most definitely not alone.  This forum and the kind folks on it are a blessing and will do their best to advise and support.

    I truly understand how it feels to be fobbed off and made to feel like you're imagining it by both doctors and physios,  I'm sure many of us do.

    It wears you down, you are in pain, tired, anxious,  need answers,  yet no one seems to be listening. 

    You even start to believe what they are saying may be right....but don't give up. YOU know your body, not them.  You WILL get there. 

    I so wish they could experience our pain for a few months...


    Stay strong and complain and/or chat anytime.  :)


    Best wishes 

    Angie 

  • memerainboltmemerainbolt IndianaPosts: 4,137

    Nancyann

    You went from the woods to the desert, both beautiful places to live. We are all very lucky to be living where we do. 

    mjcg

    Thank you very much. I love helping others because I always get so much back.
    I love where I live but I can't enjoy it like I used to because of the scoliosis and the pain. I have beautiful flower beds scattered everywhere as well as all along our wooden side walks. My daughter comes every spring and cleans all of the beds out, putting me a chair beside her to supervise lol. She says, it gives me something to enjoy when it all blooms. 

    You had made a reply in another category about meeting everyone. I have always wanted to do that. It would be like seeing old friends for the first time. And I know we would not need name tags!!

  • Angie - Made as many miles as possible in Scotland!  The Highlands, Edinburgh, Glasgow, and even St. Andrews Golf Course (which honestly felt like a spiritual moment even though I don't play golf!).  My mother was born in Ireland (Tralee) and her family was from Castlemaine.   

    This morning I woke up in pain (argh!) after a bad night sleep (pain makes it difficult to sleep!).  I had a massage this afternoon and that has helped a bit.  Especially on my upper back which is all tense from my lower back being such a wreck.  This evening it's not as sore which I'm grateful for.  Thanks for asking... and for caring.

    Memerainbolt - How wonderful your daughter comes to help you in the spring time to help with your flowerbeds!  I'm ready for spring now and it's still only January - sigh.  It would be nice to meet everyone, wouldn't it?  I "meet" the nicest people here.



  • @mjcg

    I live around 20 minutes from St Andrews! Lovely place,  very popular for tourists and other Scots. My family and I,  many years ago visited our relatives in Ireland,  many places,  such lovely people. 

    I'm sorry you hurt today. I too have bad pain levels today, it definitely sucks. Right from the get go.

    I'd love a massage, I used to get them fairly regularly but can't afford them very often now.

    You take care and keep in touch. 

    Angie

  • @memerainbolt

    How are you today Sandra?

  • @nancyann

    How are you today Nancy?

  • memerainboltmemerainbolt IndianaPosts: 4,137

    Thanks for asking. I had to go to my GP yesterday, was afraid I had bronchitis again.  Thank God it wasn't, just a bad sinus infection that I can't get rid of and very irritated lungs. I can't wait for spring!!

    How is everyone else today?

  • @memerainbolt

    Hey Sandra 

    Sorry to hear about the sinus infection,  those are horrible and painful,  I hope you get rid of that soon. I take it you're on antibiotics?

    Thankfully it's not bronchitis though.

    Not a good pain day for me at all,  but I've had worse. ( had better too). Every day is so variable,  different levels of pain at multiple places every day. 

    But pain every day for sure.

    Hoping and praying for a better day tomorrow for everyone. 

    God bless. 

    Angie


  • Sandra, I hope you are feeling better. I see my primary dr. tomorrow for 6 month check up and probably should get a flu shot. Rest and get well. 

  • Angie, I hope today was a little better. My day was much improved since the last few days when I was stuck in a back pain flare up with a migraine. Once in awhile I get a better day,less meds, and I thank God for those better days. I hope you have a better day soon. 

  • Hey everyone!  I'm doing better today - even got myself to the gym (for a low impact workout).  Still, dang it!, the ol' back hurts.  Argh!  Hope you are all doing better than a bad day!

  • memerainboltmemerainbolt IndianaPosts: 4,137

    nancyann

    I'm so glad your day was improved. Good luck at the doctor tomorrow, let us know how it goes.

    angie

    I hope your day was better, I know you were having a rough time and you so deserve a break from pain.

    mcjg

    Great to hear you had a better day and you made it to the gym!! Good for you!

    My prayer for tonight is that everyone has a good day tomorrow, may the pain be less.
    Sandra

  • Dr. Appt went well. He just put in a 4th request to insurance for mris. I am scheduled to have lumbar and cervical mri in a week. I really don’t think they will approve that quickly,but my dr. wants it asap. Part of my check up was for the eye surgeon. I will meet with her at the end of February for preop. and schedule cataract surgery. I am a little anxious about cataract surgery and being awake. Doesn’t sound very good. Anyone had  cataract surgery?

  • memerainboltmemerainbolt IndianaPosts: 4,137

    nancyann

    Thanks for the update, I'm so glad it went well. And hopefully, you will get a MRI. I've been lucky, so far no cataract surgery.

    Have a good night
    Sandra

  • @nancyann

    Great news, hopefully the MRI'S will reveal the issue and is fixable. 

    I've not had cataract surgery but I know of people and a family member that did with no issues. 


    Take care and keep us updated. 

    Best wishes 

    Angie 

  • @nancyann

    Thank you hun. I've had a few real bad days lately. Been struggling physically and mentally. 

    But there are better days where things don't hurt quite as bad,  and absolutely,  I'm very grateful for those. 

    How are you feeling today?


    Angie 

  • memerainboltmemerainbolt IndianaPosts: 4,137

    Angie

    I'm sorry you have been struggling so much. Is there anything we can help with?
    Sandra

  • angie29angie29 Posts: 98
    edited 01/26/2020 - 3:14 PM

    @memerainbolt

    Sandra,

    Thank you so much. That's very sweet of you. So nice. Bless you.


    The past few days my pain levels have been really bad. The side of my neck, shoulder blades,  upper back, upper arm. The side of neck/upper trapezius is a killer, and it feels like everything is radiating from there. My shoulders are clunking and my neck is clicking. It all just feels worse and I don't know why. 

    I just woke up that way a few days ago, and it keeps ramping up then easing a little and ramping up again. Pain ranges from 4-8.

    Not withstanding the tingling and aching in my butt and legs, which is nowhere near as bad as the upper body pains. I don't like it, but the neck is really starting to worry me.

    GERD is also acting up...

    I guess it's just got me really worried and down.

    I'd very much appreciate your prayers Sandra. 

    How are you feeling yourself Sandra? Have you gotten over the sinus infection yet?


    Thank you so much for caring.


    Take care 

    Angie


  • Angie, sorry to hear about your latest pain flare up. Gerd has been a problem for me too lately. I’ve been struggling with depression too. Sometimes it’s just all too much. I have been praying for you, Sandra , Joanne and others who have been sharing. The idea that I am not alone has helped me to cope. I hope I can be supportive to others. There are times when the loneliness is overwhelming. I have a wonderful husband who helps me with everything but I hate to see him worry, so I try hard to hide it most of the time. I like to say tomorrow will be a bit better and I hope it is for you.

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