So we’ve now had a second opinion confirming my son’s Joint Hypermobility Syndrome diagnosis. As a typical mother, I’ve been reading and researching ever since he received the diagnosis. Some consider it a milder form of the Ehlers Danlos syndrome. Some consider it a separate condition. Either way, from what I’ve read... the bottom line is that there is a problem with the way collagen is produced and this makes tendons too lax/flexible. This affects the spine when the tendons that are supposed to be holding the spine in place are not doing that well enough. The spine moves too much and can cause arthritis and just generally keep the soft tissues and ligaments around the spine irritated. Joints moving out of place are common for this condition. It is reported to be a rare disorder but one that commonly causes significant back pain when present. It often takes decades for someone to be diagnosed because most docs aren’t very familiar with it. I always thought being super flexible was a good thing. Turns out not so much! Now to find out what to do about it! More research!!!