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Gabapentin Wean

Because of side effects, I am trying to eliminate meds for how I’m feeling still 2 yrs later.  At peak was around 3000mg/day post surgery.  Down to 1200/day in last 4 months.   At 1800mg each step down of 300mg has been brutal.  Took it to 900 yesterday and somehow got through the night but my sleep was terrible, but tonight I was a complete wooster, went right back to 1200 plus a 5mg Oxycodone.  All kinds of pain at levels and frequency that I haven’t felt in almost a year.   I will try again in a week- taking it slow has helped.  I still haven’t noticed a difference with fatigue etc

  

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Comments

  • I'm impressed that you are even doing it!! Don't beat yourself up, it's tough! I'm at 3600mg!! Ugh. I'm hoping the fentanyl patches help enough so I can slooowly cut back. I wonder if it won't take awhile for the fatigue to subside. And yes, all of KC is pretty happy today!! Huge parade on Wednesday, expecting a million people. I won't be going, lol. It was 64 yesterday, 20's on Wednesday but it won't stop Chief's Kingdom! Whooo hoo!! 

  • Joel1Q, Having been thru my share of weaning off different drugs, I think you are doing great! 

    I remember that I would at some point in the wean,  have to stop and reevaluate.

    Even going back up to a somewhat comfortable level, recoup and then try again.

    Maybe even doing smaller increments.

    So since you are back to 1200mg, instead of cutting 300mg, maybe start with 50mg to 100mg.

    And realize that this might happen again.  Don't beat yourself up thinking you are doing it wrong because you aren't.

    Actually I found the slower the better.

    There's no need to stress your body to the limit trying to go too fast.

    Who cares how long it takes as long as you get there in the end.

    Putting you on the prayer list.

    Just go slow and listen to your body.

    It will tell you what needs to happen.

    You are doing great!

    @Joanne2, I mean after 50 years, they deserved it and fought hard to get there.

    So glad they pulled it off!

    I grew up in St. Joseph, Missouri which is just about 50 miles from Kansas City.

    My parents still live there and my brother and his wife live in Kansas City.

    My sister in law is a nurse at St. Lukes hospital.

    I know they are thrilled.

    Cindy

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  • Yep everyone in the great state of Kansas should be proud of their Chiefs. Lol. Another US state map border to be re-written .

    Thank you ladies for the encouragement .  I did listen to my body and finally slept about 2 hours this am, after getting myself back to 1200mg baseline. My dr did say the same thing Indy, back off and go slow, which I will do.  

    Really surprised I could get through another step down but not this time.  I take 300mg Gabapentin capsules, so there is no easy way to take 50 or 100mg with my current prescription.  I will ask my new PM Dr about prescribing lower dosages. 


  • Joel, Maybe talk to your pharmacist about how many different preparations it comes in.  I tried to look it up but there are so many.  It does look like it also comes in a liquid form and tablet form of 100mg, 300mg, and 600mg.

    Your doctor should be willing to script whatever you need since you are weaning.

    One thing I always found a big help was Hydroxyzine because it would help me sleep.

    You are doing great!  Keep up the good work!

    Cindy


  • I use 600 mg Gabapentin, they are the solid pill form which can be cut in half, that may help.

    Chip

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  • I see my PM on Monday and will ask. Though I’m not looking forward to weaning any further since the neuropathy pain has not lessened that much since going back to 1200mg. 

    After one and a half days on 900mg it’s like that Small amount unchained the pain beast which is now running out of control in the zoo of my body.  I may have to deal with the side effects on this one med, and maybe try to wean off Amitriptyline, I just can’t take the pain of the gaba wean right now. 

  • I get it, I am allowed 2400 per day, I can't take that much and still function, I got myself to 1200 but can't go any lower than that.

    Chip

  • Chip, just gotta say you’ve had way more surgeries than I have but we have a lot of similar issues.  

  • I agree, there are a lot of similarities, I can't take Gabapentin through the day, it makes me slepy, but if I don't take it at night, there will be no sleep. it's a love hate relationship. I hope you never reach my surgery total.

    Chip 

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