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Occipital to cervical fusion - questions for surgeons

Hello.  My daughter is 6 years old and will be having occipital reconstruction and occipital to cervical fusion surgery later this year.  The surgeons have not told me what C level the rods will be going down to yet.  My daughter had a sarcoma on her occiput and the surgeons had to remove most of her occipital bone.  I will be meeting with the surgeons soon to discuss planning for her surgery.  What sorts of questions should I ask?  Are we supposed to avoid anti-inflammatories while the bones fuse?  I am worried about the bone donor site, I think they are looking at her leg bones. We think she will be in a halo for 3 months post surgery to allow her grafts to heal.  Has anyone else experienced this?  Halo is not new to us, we were in one for 12 months, but I am wondering if we could get by with an aspen collar instead as it would be less traumatic. 

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Comments

  • Welcome nziris we’re glad you’re here!

    I am sorry your daughter is going through this, kids recover quickly and I hope that is the case for her.

    While you’re waiting for a reply to your first post, please take a few moments to review the Code of Conduct and FAQ section, located under Forum Tools. There you will find important information about posting in the forum and helpful tips for new members.

    Here’s a great article about ACDF surgery on Spine-health that you might want to check out: ACDF: Anterior Cervical Discectomy and Fusion. The article outlines what to expect before, during, and after the procedure. I hope you find this information helpful.

    Again, welcome to the Veritas Health Forum.

    40 questions to ask your surgeon

    Chip 

    Veritas Health Forum Moderator

  • Hi Nziris..i hope your daughter is doing well and i apologize for not seeing this before now. I had Occipital to T5 fusion, with C 6 corpectomy (3 surgeries total) a few years ago..Had a broken vertabrae(C6) that was cutting into my spinal cord. I did not have a Halo, maybe because I was 45 at the time..I consider muself lucky,  as if I hadnt had it done, the outcome wouldve been devastating.  Since it has been a month since you posted..did your daughter have the surgery and how is she doing whether or not she had it?

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  • Hi Aimee rose, surgery is scheduled for early August and fusion will be occiput to C3, with bone from her hip.  Halo brace for recovery for six months, as there will be no rods and screws. I'm hoping that she will still have a good level of movement once its fused.

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