advertisement
advertisement

I’m new - and anxious and depressed!

Names Drew - from Australia.

Been struggling with back issues most my life at 44. My issues are nothing like anyone else’s.

Keep a long story short as I can. 

In my mid 20’s a massage guy with our football team played around with/clicked my back at T4-5 area which started an absolute world of hurt for me.. He pressed a vertebra rotating out of place which sent everything crazy. Being young and silly did some chyro, gym and got on with. Was always bothersome but tolerable. Built up 20yrs of muscle memory on this completely out of shape posture. Fast forward to 2015 got a job sitting all day and trapped a nerve at that level and sent things into spasm. 

Consequently, ended up with all this muscle asymmetry in my upper back which pulls the top of my spine T6 and above left, dumping that weight on the lower part..with a whole range of issues at every level of my spine.

After 5yrs of rehab, injections, doctors ect, ect - here I am today / in twisted out of shape, constant pain at every level of my spine.

It’s a nightmare. Cannot work, live on my 70yr olds parents spare bedroom floor. Cannot socialise, no partner, no income, nothing! 

Looking a SCS and significant multilevel fusion in hopes of fashioning a life.

*Request to moderators as a consideration for a form topic.

- “Long, scoliosis, significant multilevel fusion / spinal rebuilding”? Just an thought.  

They are stories spread out over many topics and would be good to see folks who are up against this in together? 

I’m sure there’s plenty of holes in my intro but should get me started.

Thanks,

Drew.


advertisement

Comments

  • Welcome drewski we’re glad you’re here!

    We have several members that have scoliosis and have had long fusions, there is a scoliosis category where you start a new discussion but this should get you what you need, hopefully other members that have had this type of surgery will see this and comment. 

    While you’re waiting for a reply to your first post, please take a few moments to review the Code of Conduct and FAQ section, located under Forum Tools. There you will find important information about posting in the forum and helpful tips for new members.

    Have you read the Scoliosis Surgery article on Spine-health? It has some really good information about the goals of surgery for scoliosis. You may also want to take a look at the article, Scoliosis Surgery: Postoperative Care, which outlines what to expect after surgery and provides tips for planning for scoliosis surgery recovery.

    Again, welcome to the Veritas Health Forum.

    Chip 

    Veritas Health Forum Moderator

  • memerainboltmemerainbolt IndianaPosts: 4,476

    Welcome drewski to the Veritas Health Forum!

    There are many of us on here that have many of the same problems you face, from depression to scoliosis, from SCS to pain pumps.  And I believe you chose the right forum to be in. From what I read you have never had surgery (?). So there is plenty to talk about, whatever you would like to talk about first.

    While you’re waiting for a reply to your first post, please take a few moments to review the Code of Conduct and FAQ section, located under Forum Tools. There you will find important information about posting in the forum and helpful tips for new members.

    Have you read through our Chronic Pain Resources on Spine-health? You’ll find a number of valuable Chronic Pain Coping Techniques and resources for Understanding Neuropathy Symptoms. It’s a comprehensive resource for those seeking more information about chronic pain. I hope you find these resources helpful.

    Again, welcome to the Veritas Health Forum.
    Sandra
    Veritas Health Forum Moderator


  • advertisement
  • Thank you to you both.

    Yes - have been lurking on the forums for a while, and made my way through many of the articles. 

    Regards.

  • Hi drewski - I have read your post here and also the one you posted in the Scoliosis section as that is usually where I hang out. I had a fast moving lumbar curve that was 51 degrees when it was diagnosed. I say fast moving because it developed over an 18 - 24 month time frame.  For me there was no decision to be made. I was aware something was happening with my back for about a year and it got to the point that everyday I started asking myself "if I had to live with this pain for the rest of my life, could I do it?" One day the answer was "NO!"  I made an appointment with an orthopedic surgeon that week and 3 months later had a 10 level fusion from T9 - S1. That was 4 years ago and today I'm back to living my life in pretty much the same way as I was before my back started taking on a life of it's own. I had an excellent recovery, no real pain, pretty self-sufficient at about 5 - 6 weeks post op and really back to normal at 7 months. I say my decision was easy because I was 58 years old and, let's face it, my bones weren't going to get any more dense, my curve was not going to get better and would likely get worse and I was in pain. Absolutely no regrets here, I feel great and am thankful that I live in a time where these types of corrections are possible. I wish you the best in whatever avenue you pursue. Chronic pain can certainly wear you down. Cheers!

  • @urbmshr - thank you for you words and I loved hearing your story! Its good to know things can resolve well.. You hear so many horror stories! 

    Mine will be a little higher if it comes to that but what’s a few vertebrae here and there. I’m only 44 and have been very fit throughout my life so hopefully that will stand me in good stead. 

    Cheers 

  • advertisement
  • Aldo60AAldo60 Posts: 11
    edited 06/01/2020 - 8:11 AM

    Hey Drewski, sorry to say "Welcome to the Misfortune Club of Spinal Sufferors".  As many , if not all, have many varying spinal conditions a d issues, we ALL suffer with chronic pain and mobility limiting conditions affecting our well being.  Personally, i have been to 7 spinal and neuro surgeons in the past 2 years looking for immediate "CURES". All of which opined that there is no surgery for me.  I have variuos spinal issues including stenosis and facet joint arthritis throughout many areas of the spine including scoliosis at 25 degrees in the lumbar area, DDD, forward head posture which created what the doctors call Military Neck, a loss of curveature of the cervical spine, and on and on.  I am 68 years old. Fractured my right femur in 1966 at age 15, playing HS football.  After 1.5 months in hospital traction, then a full body cast for 2.5 months (the femur , the thigh bone, is largest in the body), my leg was 1 inch short, beacause the growth plate in the bone was fractured.  I learned of growyh plates just recently .  So the doctor at that time SHOULD HAVE but didn't tell my parents that i should wear corrective shoes for tge rest of my life.  MAN THAT WOULD HAVE POSSIBLY SAVED MY GRIEF .  Traumas to the spine in any way, wreaks havoc with your nervous system and therefore,  your entire well being and health.

    I have tried numerous sessions of PT, Chiropractors, acupuncture and try to practice as mush stretching and core strengthing exercises that I can tolerate.  Never took opiods !!!!  Have had facet joint and epidural injections.   They help temporarily,  but in all practicality are Band aides.  In fact, those injections of steroids can damage  other connective tissue.  Over the past 10 years as the chronic lower back pain and stiffness which has gravitated to my neck and TMJ as well , I have done more and more research of my own.   I also ha e a T9 disk herniation which according to i formation I coukd muster shows that the nerves in the thoracic spine controls many vital organs in the body, the heart, lu gs, kidneys , etc.   

    Per the advice of one of the Neurologists I consulted,a doctor here locally in Westchester county, NY, 52 YEARS In practice, i ha e started to wear decompression pump up lumbar belts  and cervical collar.  They help to decompress the spine.  Also started with  special Chirpractor who uses non surgical spinal decompression machines.  But after a bout of TMJ SYNDROME attack of serious ear ringing ( which I had already), known as Tinnitis , i stopped.  I am also very anxious overall for many years.  I  could go on and on...........  best advice to you is seek non surgical advice, non surgical treatments and get various opinions. I also started to wear a posture correcting upper body harness.  I said what the hell.  They do keep your upper torso more upright.  Try anything and everthing to help.  Various supplements can help too:, anything to help with inflammation .  That is the underlying enemy : INFLAMMATION.   Good luck.  God Bless and stay safe.


    Edited to remove doctors name, website and advice on supplements  

  • @Aldo60

    Thanks for your reply.

    You’ve definitely been put through some trauma. My heart goes out to you..

    It’s good to know I’m  ot alone..

    Cheers.

  • Aldo60AAldo60 Posts: 11
    edited 06/03/2020 - 8:49 AM

    Hey Drewski.  As many , if not all, have many varying spinal conditions a d issues, we ALL suffer with chronic pain and mobility limiting conditions affecting our well being.  Personally, i have been to 7 spinal and neuro surgeons in the past 2 years looking for immediate "CURES". All of which opined that there is no surgery for me.  I have variuos spinal issues including stenosis and facet joint arthritis throughout many areas of the spine including scoliosis at 25 degrees in the lumbar area, DDD, forward head posture which created what the doctors call Military Neck, a loss of curveature of the cervical spine, and on and on.  I am 68 years old. Fractured my right femur in 1966 at age 15, playing HS football.  After 1.5 months in hospital traction, then a full body cast for 2.5 months (the femur , the thigh bone, is largest in the body), my leg was 1 inch short, beacause the growth plate in the bone was fractured.  I learned of growyh plates just recently .  So tge doctor at that time SHOULD HAVE but didn't tell my parents that i should wear corrective shoes for tge rest of my life.  MAN THAT WOULD HAVE POSSIBLY SAVED MY GRIEF .  Traumas to the spine in any way, wreaks havoc with your nervous system and therefore,  your entire well being and health.

    I have tried numerous sessions of PT, Chiropractors, acupuncture and try to practice as mush stretching and core strengthing exercises that I can tolerate.  Never took opiods !!!!  Have had facet joi

  • I have not been coping well with pain and anxiety and depression. I really crashed last week. The pain was not as much severe as constant and resistant to everything. I tried not to take extra meds but that left me couch bound. I had a severe anxiety attack despite my lorazepam,which spiked my bp up to 160/100. I am taking 4 hypertension meds. High blood pressure and anxiety are inseparable for me. I finally realized that my lumbar pain and sciatica were off the charts. I took my strongest pain med which is tramadol and as the pain decreased so did my anxiety and bp. I don’t know what went wrong but I have been struggling with the feeling of uselessness and depression for last few days. Well that was my meltdown and hopefully tomorrow is a new and better day. Thanks for letting me vent. Nancyann 

  • memerainboltmemerainbolt IndianaPosts: 4,476

    Nancyann

    I'm so sorry you have to go through this. I know how it feels and wish there was more I could say. I also wish there was a pill for the way we feel about ourselves sometime. I do the same thing, the pain will get real bad and my BP goes up. But I don't take anything for it, I've learned how to calm myself down.

    I hope you have a good day and a better one tomorrow.
    Sandra

  • Thanks so much Sandra. I have been feeling alot better. I find just sitting on the back porch with my  dog and enjoying the peace and quiet of the desert, helps me to focus and deal with my pain. I am very thankful that my husband and I drove to San Diego for my grandson’s 3rd birthday. Playing with my grandchildren is worth an extra day of stronger pain meds. Thanks again for your kind response, I am still working on the self esteem lol.

  • memerainboltmemerainbolt IndianaPosts: 4,476

    nancyann

    I'm so glad you are feeling better. Like you, I sit on my porch in the quiet and listen to and watch nature. I had to work on my self esteem too and found in a priority list, I was at the bottom. So now, instead of always putting my house first in the mornings I put me and what I want to do first. And right now, that is sitting on my porch talking to you lol.

    Have a great day,
    Sandra

advertisement
Sign In or Join Us to comment.