Does anybody have any experience with Fibrous Dysplasia? I've been in pain a good 3-4 years now and my legs and hips are on fire every day all day. I have some issues with my spine, L3-L4, L4-5 herniations, torn disks, spinal stenosis, osteoarthritis in addition to the fibrous dysplasia in my hip and doctors are having a hard time figuring out where my pain is coming from. It's always my hips and legs but MRIs of my spine don't appear to show an issue that was cause so much pain so I just started seeing an FD specialist. It was ridiculously hard finding one, only a couple in NY. I have no idea how people live like this, I can't work, sleep, exercise, can't stand or drive for longer than 20 mins or so. I'm only 34, no idea what I'm going to do for another 40 or 50 years. my god that sounds crazy.