advertisement
advertisement

Has anyone have Cervical Myelomalacia For over five years

MikethepikeMMikethepike MIchiganPosts: 490
edited 07/16/2020 - 4:05 PM in Neck Pain Forum

I have  cervical Myelomalacia at  C 1. C 2. Although there is no compression now due to having a neck fusion over the last six years I’ve gradually deteriorated in muscle stiffness and tightness. Just wondering if anyone else has this condition and has it gotten worse for you as it has for me. If anyone has this condition I would love to hear from you. You can post a response or send me a personal message. Take care and God bless

advertisement

Comments

  • Hey Mike I had this condition along with spinal cord compression. I had surgery in Dec 2019 for C5/C6. Will be having another MRI. Still got a sore neck . 

  • MikethepikeMMikethepike MIchiganPosts: 490

    I was talking more about things like, nerve pain in the hands arms and legs and feet. Muscle atrophy weakness throughout the body, Muscle tightness and stiffness, Body feels heavy, tightness in the throat, This is stuff that as time goes on more things keep popping up. The first four weeks after my accident and Fusion of the neck I thought it wasn’t that bad, but as time keeps going on more things keep popping up. Do you have any of those symptoms that I just mentioned? Take care and God bless

  • advertisement
  • Hi Mike,

    yes i have a lot of tightness in my neck and some nerve pain in my left arm and hand. It really sucks and was hoping surgery would had corrected this. It's very depressing to say the least.

  • MikethepikeMMikethepike MIchiganPosts: 490

    Where is your Myelomalacia 

  • Hi Mike,

    Mine was at C5/C6 on the MRI where my chronic cord compression was. Funny how surgeons don’t like to talk to much about it isn’t it? Hoping over time it will get better. When you had your fusion did you get any relieve? Is it still showing on your MRI? I’m waiting for another but takes forever here in Canada .

  • advertisement
  • MikethepikeMMikethepike MIchiganPosts: 490

    My understanding that  once the damage is done it can’t get reverse. But it can cause more problems after a while. It seems like for me something happens every year and gets worse. Could be due to less activity, more nerve damage, more muscle spasms and tightness. So you live in Canada, how do you like The healthcare is there. You’re right the doctors do not like to talk about it and hardly ever bring it up, that’s why it’s called bad white matter because that’s how it shows up in the MRI. I think doctors tell you that it’s went away just so that you don’t think about it. Well take care and God bless

  • Hey Mike,

    Health care in Canada has it's pros and cons. Wait times for specialists can be extremely long it took me almost 2 years to see a really good neurosurgeon here. Wait times at hospital emergency rooms can be extremely long as well. The good thing is it didn't cost me a penny to have the surgery done as they say health care is free lol. Well sorta as we pay quite a few taxes to cover the cost of are health care of course. I've been doing some reading on myelomylacia and from what I have read it can be quite serious, not what I wanted to hear. At this time all I can do is wait for my MRI which again in Canada can be as long as 6 month wait unless your willing to travel to a larger city, which I do but with COVID they are spo backed up that I can only imagine how long I will be waiting. How long ago did you have your surgery? How did you feel after your surgery, did you get any relief? Anyways I wish you nothing but the best and hope you can find some answers. How is health care where ever you are located?

advertisement
Sign In or Join Us to comment.