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The Mayo Clinic?

Hello all,
I'm curious if anyone here has been to the Mayo Clinic, especially for a rather mysterious pain? I'm thinking of going as a last ditch effort in trying to resolve why I have so much lower back pain. I'm coming up on three years of 90% of my time spent in bed and all of my time spent in pain. Needless to say, this is not how I envisioned my 30's.
Any information or references would be much appreciated.

As an aside, I don't know what age most people are on here, but I get the sense that most aren't in their 20's and 30's. I've read some posts where people talk about a decade or more of chronic pain. How do you put up with it for that long? I meditate three times a day, see many doctors, take painkillers, etc. but it's not enough and not getting better.
My life has been totally derailed by this issue, none of my doctors can tell me what's truly wrong and most procedures make me worse. If going to the Mayo Clinic doesn't work, I fee like I'm out of options and have already started figuring out the best way to put myself out of my literal misery. This isn't a cry for help. I don't need a suicide hotline, and I do have many friends and family I can speak to. I would just like to understand how and, even why, some people put up with constant brutal pain for decades?

Thanks

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Comments

  • memerainboltmemerainbolt IndianaPosts: 4,720

    Travis_Brown

    The will to live, that's why I do it. My family, I still have so much to look forward to. I am almost 72 and have been in pain for years. I even have a pain pump. But I know I will always be in pain every day to some degree, some days are better than others. The pain took away my life as I knew it so I had to adapt. I can't do the things I used to but that's ok now. I have had to give up a lot but I still have a wonderful life.

    But I have a diagnosis, we know what causes the pain and how to treat and manage it. If you could find out what is causing your pain, get to the root of the problem, then you could move forward. Do some research on Mayo but also read the reviews. 

    Good luck, keep us posted.
    Sandra

  • Sandra,
    Thanks for the comment. I'm glad to hear you still have a wonderful life. That's encouraging.
    One of the most frustrating aspects of my back pain is that after seeing so many specialists and trying to treat my central sensitization, nothing really works and there's no clear diagnosis. I also don't feel like spending the rest of my life (potentially 50+ years) in bed.
    I will read some reviews and do some more research. Thanks

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  • Travis

    My back issues started at 22, I am 56 now, the one thing I have learned through all of this is to not give up, there is a doctor somewhere that can and will find the issue, I have struggled through that also but I didn't give up looking.

    Chip

  • Thanks for the comment, Chip.
    So, I assume you found a doctor that helped, then? Or have you gone over 30 years not knowing why you were in so much pain?
    Did you find something that helped?

    For anyone else wondering, it costs $5,000 up front to be seen by the spine clinic at Mayo, and they require an MRI that is within two years of your request.

  • Well I found a pain Dr in a big hospital and it has a multifaceted centre for treatment. Your GP Dr can refer to a Pain Management Dr. and they’re the one that find where exactly the pain generates from. 

    Like a lot of my pain is from facet nerve pain but it takes an assessment from an Anesthetist Pain Management Dr. In my case. 

    How long have you had neck pain for? I know I had torticollis   for 9 long months in my late 20’s it took a long treatment process with Physiotherapy and exercises and it went away. But hopefully you don’t give up looking for the right Dr to help you. Charry

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  • Travis

    I did find a doctor that helped, he ended up having to perform surgery twice when I was 23 and fixed the issue, those surgeries lasted over 15 years with very little problem, probably would have lasted longer but I took a nasty fall at work and ruptured another disc.

    Take care

    Chip

  • Thanks for the replies.

    Chip, I'm happy to hear that you had some relief from the surgeries. I hope you're still doing OK despite the setback.

    Charry, I've been to two pain management specialists... and my back pain still hasn't really been figured out.

  • Travis

    My original doctor moved out of state, I went through 5 surgeons before I found the one I am with now, moral of the story, if you know there is a problem and your doctor is not helping you, it's time to move on.

    Take care

    Chip

  • memerainboltmemerainbolt IndianaPosts: 4,720

    Travis

    At one point in my spinal journey, it took seeing 17 different doctors before they could figure out what was wrong and how to fix it. 

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