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AnonymousUserAAnonymousUser Posts: 49,002
edited 06/11/2012 - 8:27 AM in Spinal Stenosis
Hi everyone,

I have been reading posts all over this site for a few days and think I have found the main category for me. If I am posting in the wrong place, please let me know. I am amazed at people's conditions and experiences, and how well they seem to do in such hard times, and to then be able to help others. It is such a comfort.

I am scared to death. I have no diagnosis yet (only MRI) because I have been passed around by mistake to the wrong doctors, and am making an appt. tomorrow with either a neurosurgeon or spine specialist. I know I need that diagnosis before I know what is really going on.

I am 51 (female). Tingling and numbness in right hand, left pinky, some muscle weakness and loss (not too bad) of grip in right hand, no real pain, all over the last 6 months or so. Had MRI 2 wks ago, and since then I have had more symptoms. Minor pain in right arm, heaviness in my legs (at times), my foot seems to want to bounce up and down if I cross my legs (I can control it, but I read about this), neck pain with headaches (a couple of times), also pain in my right toes (once).

I don't feel that badly, the symptoms come and go, but they are very, very scary. I assume I have cervical stenosis and perhaps lumbar/spinal?? Is this also called myelopathy?

MRI says: Caliber and signal characteristics of visualized spinal cord within normal limits. Multilevel canal narrowing, C3, C4, through C6-7. Not good, I don't think. Neural foraminal stenosis above described levels. Central canal stenosis.

Experiences or comments? Does this seem to warrant surgery now? I certainly don't want that, but if symptoms can progress quickly - is there a risk of serious disability, even paralysis, especially without surgery? The surgery must be very difficult. I would really appreciate any honest thoughts or anyone who may know of similar experiences. If it is best to wait for a diagnosis, I will do that and come back! Thank you!!!!!


  • I think it's always better to wait for a diagnosis. None of us here are qualifies to interpret MRI results and to try to do so would be negligent. All I can do is tell you to note all of your symptoms and what seems to trigger them in a diary and take it with you to your appointment so that you don't forget to tell the doc everything.

    I know how hard this is but try not to be too alarmed until you know what is going on. It's easy to read these boards and say "that sounds just like what I have!" but there are many conditions that can cause similar symptoms.

    We're here to help you through this scary time and help in any way possible. Please don't hesitate to let me know if there is anything I can do, even if it's just to lend an ear.

    Hang in there. I hope you get an appointment soon.

  • Hi Griff,

    Thanks so much for your post. That was very kind of you. I do understand about the diagnosis issue. It would definitely be rash and negligent. I have just been so scared (obviously). I did get an appointment today (2/10) with a doctor at a Spine Evaluation unit at an excellent local hospital. So in the meantime, I will write things down and continue reading here. I will also be interested to learn about your experiences and how you are doing, as well.

    Thanks again.

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  • It's terrific that you got an appointment so soon. You won't have to be scared for too much longer! I know that I'm calmer when I know the truth, even when it's bad. The unknown to me is awful!

    My experiences have not been good so I'm not going to color your world with them now. Just remember that people like me are the exception, not the rule. I continue to be optomistic the I will find some relief from my problems and I am equally so for you.

    Let me know what happens with your appointment. PM me if you need to, I don't often come into this area but your post caught my eye.

  • Griff, thanks again. I will keep you posted and we can talk more later. I may PM later!
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