I finally got the answer -- and its been there for the past 3 months!!
Neurosurgeon did his exam, looked at MRIs and said he doesn't see anything. When I asked about the part on the report that said herniation he read the reports. He was shocked and admitted that the radiologist was right and that I have a herniation at T1/T2 pressing on the T1 nerve root. He was shocked because it was very hard to spot and he says this area never gets injured because it is so well protected. He also said it is not prone to degenerative disease which is good for me because now the insurance company won't fight it.
WHat I want to share is that he says this herniation will cause the neck, shoulder and collar bone pain that I have been getting. Also the pain up the side of my face to my ear and sinuses. So all of you who have this unusual pain you might want to ask your doctor to look a little lower on your neck.
Doctor says that there is no PT or other therapy or treatment for this level herniation. Surgery is the only solution. He says he will remove the disc and that there is no need to replace it with anything or do a fusion because this area does not move and is well protected by the ribs.
Now when do I do this with the holidays coming up???