I am a newbie to the site. I'm hoping some of you may have had similar experience and some suggestions about what my next moves should be. Briefly, I am 41 and I have failed back syndrome. I've been living with cronic back pain for 15 years At 25 I had my first AILF at L5/S1. It took 3 more years of pain for the docs to realize that I jhad gross motion in the instrumentation they used (BAK titanium cages). FYI - all my radiology at the time came normal. I then had a 2-stage circumferential fusion with pedicle screws and rods to correct the instability. For the next 8 years I was improved - never pain free - and could function as long as I had cortisone injections every 3 months and took my meds. 4 years ago I became pregnant with my first child and then my second. They are 20 months apart. Since then the pain is devastating. There are so many pain sources that I can't even tell which is which anymore. Last MRI was Sept. 2010 which showed a myriad of issues from T10 all the way to L4 including annular tears, degenerative disk and facet changes, osteophytes and foraminal stenosis. But all mild or moderate. To top it off, over the last 18 months I have developed debilitating excruciating coccygeal pain. I live on 10 - 12 oxycocets a day, nucynta, desipramine and have had several blocks including par vertebral, epidural and 2 SI Rhizotomies. Just had a coccyx xray which came back normal. I'm at my wits end. My kids are 2 and 4 yes old and they need me, but 90% of the time I'm laid up in bed. I need to take matters into my own hands and devise a strategy for going forward.
My research has come up with a few possibilities.
-Caudal block - has anyone had one? Successful?
- ganglion impair blocks (same questions)
- spinal cord stimulator (which scares me to death and I hear is better for leg than back pain)
- seeing a physiatrist for PM&R
- new MRI and CT to compare to the one 2 years ago - worthwhile?
- concerned that, like 12 years ago there may be instability in my cages that cannot be detected on radiology due to mettaluc artifact - but wouldn't the screws and rods compensate for the cages?
Finally, with regards to coccydinia, does a normal xray automatically eliminate micro fracture or dislocation?
Sorry for the epic post, but thought I needed to give some background to get accurate advice.
Thank you in advance not only for yor time