Hello everyone. I am a newbie to this site and i am looking for advice/help and if anyone else has experienced what i am going through.
I have a herniated disc (L5) i am a 31 yo male. I received an epidural injection. Two days later i became bedridden due to extreme dizziness and nausea and bad headaches. The symptoms become tolerable while laying in bed but got worse while standing/sitting. Two weeks later dr did a blood patch. All was fine 3 days later.
A month later i returned for a second epidural injection. 2 days later i became very dizzy, nauseous, headaches and lightheadedness. The dr thought it was a reaction to the steroid. 3 weeks later the dr was not convinced i had a leak. he conducted a caffeine iv to treat my headache. The iv cured the headache i had that morning but gave me a worse headache that night. After not working a week later another blood patch was conducted. The blood patch (In my opinion failed). The symptoms did not dissipate. Several weeks later the dizziness got worse to point i have been dizzy for 10 weeks now and bedridden for 3 weeks. When i stand i am off balance and stumble into things and i have this drugged/out of body, fuzzy feeling in my head. When i stand for longer periods of time or look around the room it gets worse to point i am about to vomit. The dr still not convinced that i have a leak sent me to a ear,nose and throat neurologist. He thinks its possibly a leak and does a test where he puts hot air and cold air in my ears (after almost vomiting) he said i had abnormal results. Nystagmus in right eye was 50% and 29% in left eye. he said average person is 15-25%. another test was done for pressure/fluid in my ears that came back normal. He now thinks its an "inner ear nerve virus" that has no name and not much is known about it.
I find it hard to believe that a virus would cause identical symptoms two days after a procedure done twice within one month.
i have been to two ER's, primary doctor, ENT etc etc. No one seems to think it is a leak. I have been trying to get an MRI done but no success yet.
My question is, has anyone else had this experience? does it sound like a leak to you? (Sorry for spelling, grammar, i typed this on my iPad). On a side note. Other day I didn't drink caffeine and was sitting a lot. I had such a bad headache I was laying on the floor under the toilet because I was on the verge of vomiting due to the pain in my head.
Thank you for any posts!