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My pain is so excruciating and I'm losing my mind

I just don't know how to cope with this awful pain anymore. In 2011, when I was 22, I had an L4/L5 herniation. My disc (l5 was the main problem) was pressing my spine and pinching my sciatic nerve. So the neurosurgeon did a laminectomy/ discectomy (not micro). It didn't work at all. Not even a full year later I'm having a second surgery for stenosis and another L5 laminectomy/discectomy. That one failed as well. Its been about a year and a half and my pain has just increased. I've done spine epidural steroid injections and caudal nerve root block injections that did no good. At the present moment I'm having a burning pins and needles sensation from my left foot up my entire left leg. It never ceases. I see a pain management dr who is also my anesthesiologist that performs my injections. I haven't been able to tell him about my new found symptoms because they just started again 3 days ago. During the time span of my first surgery and now I've lost 40 pounds. Still no relief. I'm a mess who can barely walk 10 feet without wincing. Presently I'm taking 10mg percocet 4 times a day and have been for 3 years. I'm depressed and miserable. I have no idea what to do.
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Comments

  • dilauroddilauro ConnecticutPosts: 12,099
    Why were there the two failed surgeries? Was it the same surgeon? I have heard of a person having perhaps one failed surgery, but not two.
    What was the rationale that the surgeons gave you for these problems? Since the last failed surgery and the fact that your pain has increase, what has been the recommendation/options and action plan by your doctors.
    I am not sure what your new found problem is. The amount of percocet that you have been taking since your first surgery is not a very high dosage, but when you talk about the frequency through the day, that changes things. Then its pretty clear that your doctor(s) are still writing prescriptions for percocet but what are they doing?.

    Sorry, I was getting a little confused with your thread.

    What I did understand is that you are in pain, you are frustrated and getting depressed. What other treatments, such as Physical Therapy, Aqua Therapy, Tens, Massage Therapy , Acupuncture have been offered to you. Sounds like a good portion of your pain is nerve related. Has any of your doctors suggested nerve medications?

    Sorry for all this questions, but I am trying to piece this all together.
  • My first surgery was done in Ohio by a neurosurgeon. He said that my mri showed a severe herniated disc that was pushing my spine and pinching my sciatic nerve. He told me that I had no other option but surgery because I was at risk of losing control of my bladder and bowels. So I had the surgery. I moved from Ohio back to my hometown Mississippi. I sought help from another neurosurgeon and a pain management specialist. I underwent two epidural injections and two nerve root block injections. When those procedures failed to help, the neurosurgeon explained that my spine had narrowed, stenosis, and that my discs were herniated again or still. He told me that I needed another surgery. So I did. It's been a year and a half and my pain has never gone away. I had to stop going to my pain management specialist in January off 2011 because I found out I was pregnant. During my pregnancy, my pain was unbearable as you can imagine. After I delivered by c section my obgyn referred me back to my pain management doctor. He didn't order another mri, he just started prescribing the same medicine I was taking prior to pregnancy and when I was 6 weeks post partum he did another round of epidural injections. I have not had a followup appointment to actually see him at the office yet so we don't have a course of action unfortunately. I'm actually trying to call him today to get an appointment to see him. If you have any more questions please ask. Thank you
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  • I had to mine removed a section at a time till I had no disk for 1 year. I then got new dr. And he fused and I could do anything I needed to. Went home alone took care of myself and 2 puppies. Now I have 6 fused disks and a spinal stimulated and still work construction. Don't let it mess you up mentally you can overcome this.
    Djg3635
  • Have you been prescribed meds for nerve pain at any point? It sounds like you are experiencing a lot of that what with the stenosis and lower limb symptoms. Some examples are Lyrica, Neurontin, Cymbalta, Elavil and Pamelor among others. Opioids like Percocet don't work that well for nerve pain.
  • My pain management Dr has given me lyrica, and another one I can't remember but they didn't help none of the others you listed though.
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  • dilauroddilauro ConnecticutPosts: 12,099
    I still would love to know what your doctors want to do with you?
    Since they continue to write narcotic prescriptions, they feel justified that you are in pain. But whats the next step?
    You just dont want to be hanging around in limbo
  • ChronichelperCChronichelper Posts: 2
    edited 01/25/2014 - 7:48 AM
    i have also had 2 failed back surgeries fusions i. l5s1. it us called failed back syndrome and yes pain is so hard to deal with.

    post edited by the spine health moderation team
    please review the forum rules prior to posting at these links for more information.
    https://forum.veritashealth.com/announcements/spine-health-announcements/current-spine-health-forum-rules

    https://forum.veritashealth.com/announcements/spine-health-announcements/changes-forum-rules
    Dbrogni
  • The user and all related content has been deleted.
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • elizagomez599eelizagomez599 Posts: 1
    edited 01/28/2014 - 11:49 PM
    The chiropractors . Hope you would be back to your previous state very soon !!!

    Post edited to remove specific facility. Please read the Forum rules
    Post Edited by Liz The Spine-Health Moderator Team

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