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25 year old, chronic low back pain 3 years no resolution

kfaristkkfarist Posts: 1
edited 12/09/2014 - 2:13 PM in Lower Back Pain
I began having LBP in the summer of 2012. I had no injury or mechanism of injury, the only possible factor is that I had just begun running several miles for the first time in my life. It began as only localized pain in my left low back at the SI joint/PSIS area. Over the next few months it progressed to pain down my leg (only in calf, not thigh) and muscular pain on the left side in the muscles throughout the spine. I have been to countless orthopedic MDs as well as PTs and chiropractors who all have said that they see nothing wrong with me, or some who said my SI joint was the culprit with it being out of alignment. Treatments for these things have been without relief. I now take Neurontin everyday to try to keep the pain in my left calf under control. Last spring I even had the SI joint injection with fluroscopy without any real relieft, but I still feel the left SI joint is the origin of the issue. I can feel the left PSIS protrude posteriorly and snap in and out of place when I stand up from seated. Since this issue is very chronic now I have pain in my upper left spine as well (both thoracic and cervical) that is unresolved with massage and chiropractic treatment. I feel very hopeless. I am so young, and am I going to have to live with this pain forever? Each new doctor I try just orders more of the same expensive tests which lead nowhere, and has put my family into extensive debt. I feel my life is very limited now, I am unable to exercise, sleep normally or do things normal young people can do. I have to take care and precaution to try to sleep in the most ideal condition for my back (pillow under left side) and cannot tolerate sitting or standing for that long. I would love to get back to running again, but it seems impossible now as I cannot even live one day without pain. I have had pain every single day for the past 3 years and the thought of living this way for the next 50 or 60 years makes me almost not want to live. Can anyone help?


  • oracle133ooracle133 Posts: 4
    edited 12/13/2014 - 4:08 AM
    So sorry that you're going through this. I'm also suffering from chronic lower back pain, it's been about 2 years now, 25yo male. I don't understand why doctors are so bad at treating back pain. It's honestly unbelievable. I've seen about 4 different doctors now, and I wish that somebody would have told me from the beginning that it's extremely unlikely for a doctor to be able to accurately diagnose back pain, and more likely than not there may be nothing they can do. I am also feeling pretty hopeless at this point. It takes me hours to get to sleep, the whole time in moderate pain, and I have to sleep with my legs hiked up and knees bent lying on my back. I don't understand why there isn't more institutionalised support for people going through our type of chronic pain which seems to either have no cause or is too complex for doctors to diagnose. My mental health, like yours, is suffering from this prolonged chronic pain and the stress of constantly having to think about how to live the rest of my life with this. I think because we are young, doctors are hesitant to start trying to help us coping with the problem, rather than trying to solve the problem. While I would love nothing more for both our problems to be resolved, I think we do have to face up to the possibility that they won't, and start planning with a specialist for how to manage our lives and to cope with pain in the best possible way to continue to lead fulfilling lives. But I've received absolutely no support in this. I'm seeing a hip specialist on Wednesday, and I've decided I'm absolutely going to demand that she give me some advice on how to cope with chronic pain, which at the moment is the main problem for me. Doctor's tend to look at the issue in a 'functional' way, i.e. can your body do things properly - for me, even though this is important (I can't sit for longer than 10 minutes without pain), it is so secondary to the problem of chronic pain which is depressing and ruins my relationships and ability to enjoy life. I need a doctor who will stop promising fixes to a problem that may have none, and start helping me cope with this chronic pain.

    Sending my love to you, keep communicating and talking through your feelings, I am here if you need to talk.
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