Hello Everyone, Im glad to meet you guys & gals,sad to have to meet you all in pain though. Im also a chronic pain patient & have been on a variety of medications and tried quiet a few sets of injections,along with multiple surgeries.
I have a new medicine question & Ive read all i can online & different google searches, but this forum has the most 1st hand experience, and i really need you guys thought,opinions & experience.
For the past 5 years after my last surgery C2-C7 with hardware. I now await brain surgery for Chiari 1 malformation.
My doctor of 17 years kept saying he was going to reffer me to a colleague of his,because my doctor was relocating & this never took place, so in a emergency i went to a walk in clinic clise by,explained my situation and the doctor there saw me & prescribed emergency meds at a reduced dosage until i could get into a pain management clinic.
To the point here,
Ive taken these pain medicines for 5 years with no adjustments to dosage from the doctor.Ms Contin 60mg every 12 hoursHydrocodone 10mg up to 4 dailyNeurotin 800 4xs daily
I've just gone to one of the few pain managment clinics in my area, its very scary when your suddenly dealing with a whole new staff in a clinic, after 17 years,of the same doctor.
They prescribed Fentenal 50 mic/hr every 72 hoursNeurotin 800 3 times daily(Ive read horrible stories of death and horror stories from fentenal )
Im scared to death of switching medicine( & fentenal) , but they didn't offer me any options & because i have no "long term doctor ", i feel like i have no one to 'back me up' with my concerns with a medication change.
Im not comfortable with this clinic and the nurse practitioner i saw there was, very cut and dry. I was told to place the patch on my upper body,never the same place twice & proper disposal, also she told me there would be some transition id have to get used to and " to not call up there in 2 days saying it doesn't work"
Could anyone offer any personal experience with this medicine ?please? Im scared this won't cover my pain and ill have no break through medication & heck i kinda feel the nurse doesn't want me to call.
Problem is that ill have absolutely nothing to take once i fill this prescription, because I've depleted any extra meds i had stored for emergency, because of a,6 week wait for a apointment.
Please if any if of you all, have experience with this medication or any knowledge, please help settle my nerves, Im scared and alone in this,i really need support & experienced opinions.
Im Kinda stuck with having to make this,sudden transition in a week & i have no options, no one to talk to about this & absolutely i am terrified of this medication switch over and i feel like i have no where to turn & noone to help settle my mind with this. Im a,timid person and I fear this medication, i told the nurse tgat im very afraid to switch,she was nonchalant about it & said : What if the medicine change helped you tremendously? I told her,I'd do alot to regain some function in life,that im stuck in my bed the mass majority of the time. .etc So looks like im going to be stuck with this change over.
Please any experience, of similar meds, & stories would be a,God send to my nerves and keep me from extreme panic ,ive read for 2 days anything i could read about Fentenal and chronic pain, and joined this,forum to give,and recieve support.
Thanks for you guys helo in advance ~ broken