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Recently Diagnosed

tillerttiller New JerseyPosts: 0
edited 07/11/2016 - 8:19 AM in Fibromyalgia Forum
Hi guys

I was recently diagnosed with fibromyalgia and I am starting understand the difficulties that I will need to face in the coming years. 

One thing I would like to know is any therapy to help with the pain , I was reading mentioned acupuncture, light massage therapy.

I would like to know any therapies that are tried and tested and that have worked for everyone here. My husband is insisting on the acupuncture but I don't trust those fine needles.
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Comments

  • Hi Tiller, sorry to hear you have fibromyalgia. It doesn't seem real to us until we're diagnosed with it. It's a rough ride but there is hope out there. Look up the Guafenesin protocol. People with fibro excrete phosphorous from their kidneys sluggishly and a simple OTC med can help lessen the duration and severity of the symptoms. I've tried it and feel that it helps. The worst for me is the fatigue and pain. I'm getting over my recent flare which was horrible. Before taking Savella, the flares lasted for months. Now it's only a week to two weeks. There's a wonderful  book called What Your Doctor Isn't Telling You About Fibromyalgia. They cover the Guafenesin protocol in detail, along with other self help remedies. It was truly eye-opening. You'll find lots of helpful videos on YouTube as well. I've haven't tried accupuncture, but a massage sounds heavenly to me. Feel free to PM if you have any questions. 
  • I love a good massage, but I actually feel worse afterwards. I have heard good things about accupuncture. I am really wanting to give that a try. I have had FM for years and pretty much ride the wave of symptoms. You will have good and bad days. For me fatigue is a huge thing and the forgetfulness I can get through the aches and pains. Just dont over do it on your good days that is key. You will learn to pace yourself. I only take a muscle relaxer and am thankful for that with opioid scare I dont push for anything more. I wish I had more advise but everyone is truly different with FM. You are a warrior and will quickly find what works for you. Take it easy when u need to and learn to say no when needed.

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  • just had Rheumatologist tell me about Fibro two weeks ago. not sure what to think. I mainly have balance issues and vision problems...neck pain and some joint pain , but not as bad as last year...my big headaches have almost disappeared...but who knows...what does everyone think on their diagnosis? I dont want to be skeptical, but so far it's the only doc that has been very sure.

  • memerainboltmemerainbolt IndianaPosts: 4,135

    Hedavs

    I was diagnosed over 20 yrs. ago with Fibro. There are a lot of side effects that go along with it which makes things get complicated when trying to find a diagnosis for something else. Is the pain I'm having from arthritis or Fibro? Are my headaches because of my neck or the Fibro pain? I have vision problems too, which is another side effect. Throw in ruptured and herniated disc and scoliosis and the Fibro seems to take a back seat with the doctors.

    Sandra


  • memerainbolt  thank you.  Happy New Year!

    yes, i was told no rheumatoid arthritis cause what I am going through although it is similar sometimes.  also the blood work shows nothing reactive on those areas.


    My balance is poor and vision, too. even when lying down I feel I am moving around or submerging/litting off the bed. walking is troublesome and cant stand light.  I am being treated for Vertical Heterophoria, but that's only the side effect of something, not a problem in itself. at least that's what my neuro ophtalmologist explained...not sure what to do and no doctor seems to help except by saying to exercise and eat well...I had a fun fact for them I had been doing exercise and eating well for years now...(unless that is the root of the problem and I will start eating all junk food). ANyhow, not getting desperate , but may follow a homeopathic way if possible, except some docs like this or integral/functional cost a whole life of paychecks no one normal can afford.  we have this forum for support is all I can say since therapies are also causing problems already. 

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  • memerainboltmemerainbolt IndianaPosts: 4,135

    Hedavs

    I'm sorry you are having problems already with therapies. And yes, you have this forum for support.
    Sandra

  • and I thank there is such support here...it has been a 2 year journey for me, and I know for some it has been longer.  Hopefully all of us find a way, and meanwhile keep living and try to be "normal" :)

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