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Seeking for Decision Making Assistance

24

Comments

  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,496

    momo-k

    You are not alone.  If you can live with your symptoms, wait.  You certainly would not be alone in waiting.

    Ask your NS what happens if I wait?  The answer will be speculative, but should include some worst case things, and hopefully some best case.

    Don't let your NS tell you that you need surgery, unless there are some predictable consequences of not having it.  We have seen members who were told that paralysis would occur without stabilizing surgery.  I need heart surgery because death is a possible outcome without it.  I only needed surgery because I couldn't continue to work with the symptoms that I had.  I am happy that I did have the surgery.

    Bruce

    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

  • Hey Bruce, thank you for being here. :) Thank you for allowing me to bounce off my feelings, thoughts, and so on.  It helps me sort out things inside my head.

    Bruce Eitman said: I only needed surgery because I couldn't continue to work with the symptoms that I had.  
    ^^^ what you said^^^ This is a good point. I still am able to work except the days when I have pain/flair ups. My job is rather mentally strenuous, so it gets HARD to endure when both collides on the same day.

    I did ask the questions you mentioned, he said, "It will not get better, but will only get worse. Once spinal cord is damaged, the damages will be permanent."
    ^^^This makes me almost convinced to go for the surgery. 

    I fell 4-times in last 3-months due to clumsiness, and sprained my ankle (still recovering) and bruised my knee.  :|  This  perhaps is a sign that telling me that I need to pay attention to my health.

    One thing I can say, however, is that some symptoms that I have been experiencing start to make sense. I wasn't making stuff up or imagining pain like some doctor thought I was. :/ 

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  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,496

    mono-k

    We agreed earlier that the decision is yours.  All I can do is discuss it with you to help you make the decision - and I am more than happy to do that.  Bounce away!

    You may want to put things in columns - falling goes in the bad column especially when you injure yourself.

    I can't imagine having a doctor who thought that I was making it up, so I am so happy that you found a doctor who diagnosed you.

    Bruce

    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

  • Yes absolutely, Bruce. I apologize if I indicated/implied somewhere that I was asking for you to decide for me. I wasn't. I will make a chart as you suggested. Thanks again for your patience with me. I am growing impatient with myself so I know it is not easy. 
  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,496

    Sorry, no, you never indicated/implied otherwise.  I didn't mean anything bad by it.  Just a poorly worded way for me to tell you to keep using us/me as a sounding board.

    This discussion may help others as well as you.  It is a hard decision for many, especially if the symptoms are still tolerable.

    Bruce

    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

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  • :) A reminder is always a good one! 
    Thank you @Bruce Eitman  for being here. My walk of path to recovery has been a challenging one, but knowing that this support group being here makes me feel at a bit of ease. As I said, one has to experience "this" to know what it is really like.

    oh btw, have you ever experienced or read somewhere that regarding a difficulty to walk down stairs (fear of stumbling down)?

  • Bruce EitmanBruce Eitman Akron, OH, USAPosts: 1,496
    momo-k

    oh btw, have you ever experienced or read somewhere that regarding a difficulty to walk down stairs (fear of stumbling down)?

    Are you taking any medicines that my cause it?  I experienced that when taking Lyrica, and it took almost 2 years to get over it after I stopped taking it.

    Bruce

    Read my story at Bruce - My Story
    ACDF C4-C5-C6-C7, and getting better every day
    It has been a process of healing, learning, exercising, and resting - and figuring out when to do which.

  • momo-kmmomo-k Posts: 127
    edited 08/23/2016 - 7:42 PM
    I had an appointment today with a surgeon who performed Acromioplasty last November. He is the one who referred me to spine specialist due to my slow recovery from the surgery. I thanked him for referring me and not giving up on me. I informed him that there is a necessity for me to have coroectomy and ACDF. His reaction to this news scared me, and showed the magnitude of this spine surgery. His reaction to corpectomy was rather disturbing; maybe I am reading into it to much. :( Needless to say I am depressed.  :( I am unable to think or do anything else... :....(
  • momo-kmmomo-k Posts: 127
    edited 08/26/2016 - 6:46 PM
    update on my journey...
    I had a meeting with a second neurosurgeon. He was very nice and was more personable.

    There were some differences in their approaches on my surgery; such as discectomy v. corpectomy, cages v. something else?, and so on. His opinion on as far as having surgery was, "Depends on my symptoms, my torlance on pains, and how it's effecting my quality of life."  First doctor said a surgery is a necessity. The second doctor said he would push for a surgery harder if I had stenosis with myelopathy. Then now that I think;  Aren't pain, tingling, and dropping objects part of myelopathy symptoms?

    One doctor say symptoms could get worse over time, then other say maybe no... It starts to sound like a lotto.
    decisions decisions...




  • RRMRRM Chennai, IndiaPosts: 20
    edited 08/30/2016 - 4:56 AM
    Dear Momo-K,

                  As far as possible try to avoid any form of invasive procedures on the Spine and keep it as the last option when every other alternative fails, because any unwholesome Invasive surgical procedures like Corpectomy & Discectomy is going to be a permanent Damage on the Spine and there is no Turning Back from them. I am 45 years and had multiple fractures on my Spine with a Cervical Fusion at C1-C4 and am Anterior Corpectomy procedure with Pedicle screws to support the Expandable Cage at T6-T7.

             I have got the Cervical Fusions and the Pedicle Screws removed in 2011 but the Expandable Cage cannot be removed since it is embedded deep inside the Spinal vertebrea and bones have grown on top of it and I see it more like a permanent damage and an artificial Disease on me. After removing the implants I have been managing myself by maintaining proper Spinal Postures & Breathing exercises that strengthen my Spinal Muscles & Nerves.

         But life is not Normal anymore with the Expandable Cage that keeps acting as a prod from within and I prefer not to take any Medications & Pain killers, and still living in the hope of getting the Expandable Cage removed some day in the future when Stem Cells and Bone Regeneration Technology develops.

        So please try all the other alternatives by consulting a Physiotherapist to help improve your Spinal Postures and strengthen your Neck & Spine muscles before taking the decision to go for an Invasive Surgical Procedure like Corpectomy or Discectomy.

    Best Wishes & Regards,
    Rajmohan

        
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