First off, I can't name names but over the years I have gotten some useful information from this site, so thank you for that.
I have been rear ended twice now. I had an acdf at c4/5 in July of 2009. I still had a lot of pain but I was told I was fused. I was sent to a premier spine and pain center. I was not treated very friendly and I often felt faulted for being in pain. I stuck it out as to not cause further waves. I finally left there and struggled to find a doctor that would help me since I was a pain center drop out.
In 2013 I was told I had a hook shaped stenosis poking into my right c4/5. I had a posterior surgery in mid-October 2013. That surgery led to a staph infection.
I still have had huge amounts of pain. By summer 2015 headaches ruled my life in addition to pain. I started seeing the other pain dr in town who tried the steroid shots but also sent me to another surgeon. Between these drs I was informed I was not fused. This surgeon kindly offered to wave his fees but I cannot tke him up on his offer because his hospital is not in my network.
I found a highly spoken if surgeon in another city. They informed me they think I was never fused. I have almost all my ducks in a row and am waiting to have a new acdf c4/5 scheduled. I will be going through that soon.
I really struggle with a lot of issues from how I was treated, to coping and holding the bag for a lot of things out of my control. I am trying to walk it off but I let myself get hung up on a lot of poor treatment.
I hope to be able to keep moving forward and maybe help others too.
Thanks for reading,