I'm new to this forum and would love to get some advice because I have no idea what to do anymore.
When I was 22 years old and graduated from college, I started my first job as a Big 4 auditor in New York. For the first time in my life I was sitting for very long periods of time, sometimes up to 15 hours in 1 day. About a few months in I began having back pain. The pain was dull and achy and in my lower back area to be exact but the pain felt like it was in my buttock. I constantly had to get up and stretch in weird positions so that my back/butt would be relieved. I would get this dull ache intermittently. Sometimes when I would sit (with bad posture, which was usually the case) and sometimes even when I was standing during meetings.
I didn't know what to do. I purchased a back support on my chair to be more ergonomic and started getting massages regularly. The only thing that helps to give me some relief is pressure to the butt. Either a deep massage or I even resort to hitting myself in the butt hard when I'm alone in private. It's very weird but helps.
Last summer I decided enough was enough after 3 years and went to see an orthopedic surgeon. He did x rays of my pelvis and then ordered a pelvic MRI. Both were normal. I swallowed it like a bitter pill and went on with my life. A few weeks later on the way to work on the train, the dull, deep, butt ache returned and I decided to get a massage. As the massage therapist was massaging my pain area she felt what she described as a knot. She said there was one on both sides of my lower back though the one on my left side was way bigger. I honestly can't even feel anything on my right side but DEFINITELY felt the one on my left side. It feels like the size of a golf ball but it can't be seen with the naked eye. I have to press down and palpate it though it helps when I bend forward, then you can definitely feel it.
I got worried and called my MRI lab to double check that the Pelvic MRI didn't show any type of mass. They double checked again and sent me a second report which stated again, no soft tissue mass or osseous neoplasms or necrosis were visible. All fine.
I was still dumbfounded so I went back to visit my Orthopedic surgeon. He felt the lump and said it wasn't a muscle knot. He said it was just a clump of fat and scar tissue.
7 months later I decided to see a second orthopedic spine surgeon who sent me for another MRI, this time a lumbar spine MRI. Again it showed absolutely no abnormalities and I asked him to feel the lump again. No concerns.
So now I've had this deep,/achy intermittent, SI joint pain for 4 years, normal pelvic x ray, normal pelvic MRI, normal lumbar spine MRI. The only thing that helps is massage or pressure of some sort.
I'm now seeing a pain specialist who used to be an orthopedic surgeon and he told me I just need to be active and exercise since I don't much anymore. Mind you, I'm 6'1 and weigh 175 lbs so I'm not even close to overweight and am in fairly decent shape. I used to run track and play tennis.
Is this normal? Has anyone else experienced this? I feel like I'm way too young for this. I also still have no idea what that lumpy tissue I feel on my left SI side is. I'm a huge hypochondriac so I always assume that it's deadly. All I see when I search on google for the past few years are bone tumors.
Would a pelvic and lumbar spine MRI show the SI joint well?
I constantly look at my MRI reports for both MRIs as well as all of the images (there's many and I have access to all of them). This fear is driving me crazy to be honest.